lynnbellamy's interview


How did all start?

General feeling of itchiness, then my partner notices the area was very white and that is when I had a check upat the doctors

Do you already have a diagnosis? How long did it take you to get it?

Yes I have a diagnosis. Once my doctor referred me to the hospital, a biopsy was taken thn and there and I had the results back very qucily

For what medical specialties have you been treated? What has been the most useful specialty for your?

I use a steroid creme when I have a flare up. This is the only treatment I have been given

What has been the most useful thing for you so far?

*see above

What have been your biggest difficulties?

Flare ups of itchiness and tearing of the skin

How has your social and family environment reacted? Have your social or family relationships changed?

Yes they have changed. My partner and I are a lot less intimate now due to this disease

What things have you stopped doing?

*see above

What do you think about the future?

I hope more reseach is done into this problem to see what can be done

What would you like to do if you didn’t have your condition?

Nothing different

If you had to describe your life in a sentence, what would it be?

Life is good

Finally, what advice would you give to a person in a similar situation?

Keep getting checked


Apr 23, 2018

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