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Living with Lichen Sclerosus. How to live with Lichen Sclerosus?

Can you be happy living with Lichen Sclerosus? What do you have to do to be happy with Lichen Sclerosus? Living with Lichen Sclerosus can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Lichen Sclerosus

Living with Lichen Sclerosus

Living with Lichen Sclerosus


Lichen Sclerosus is a chronic skin condition that primarily affects the genital and anal areas, although it can also occur on other parts of the body. Living with Lichen Sclerosus can be challenging, but with proper management and support, it is possible to lead a fulfilling life. Here are some tips and strategies to help you navigate life with Lichen Sclerosus:



1. Educate Yourself


Knowledge is power when it comes to managing Lichen Sclerosus. Take the time to learn about the condition, its symptoms, triggers, and available treatment options. Understanding your condition will empower you to make informed decisions about your health and seek appropriate medical care.



2. Seek Medical Care


If you suspect you have Lichen Sclerosus or have been diagnosed with it, it is crucial to consult with a healthcare professional who specializes in dermatology or gynecology. They can provide an accurate diagnosis, recommend suitable treatment options, and offer ongoing support and guidance.



3. Follow Treatment Plans


Once diagnosed, it is essential to follow your healthcare provider's recommended treatment plan. This may include topical corticosteroids, moisturizers, or other medications to manage symptoms and prevent flare-ups. Consistency and adherence to treatment are key to managing Lichen Sclerosus effectively.



4. Practice Good Hygiene


Keeping the affected areas clean and dry is crucial for managing Lichen Sclerosus. Use gentle, fragrance-free cleansers and avoid harsh soaps or irritants that can exacerbate symptoms. Pat dry gently after washing and consider using a hairdryer on a cool setting to ensure thorough drying.



5. Wear Loose-Fitting Clothing


Tight clothing can cause friction and irritation, worsening Lichen Sclerosus symptoms. Opt for loose-fitting, breathable fabrics such as cotton to minimize discomfort. Avoid synthetic materials that can trap moisture and heat, creating an environment conducive to flare-ups.



6. Manage Stress


Stress can trigger or worsen Lichen Sclerosus symptoms. Find healthy ways to manage stress, such as practicing relaxation techniques, engaging in regular exercise, or seeking support from friends, family, or support groups. Taking care of your mental well-being is an essential aspect of living with Lichen Sclerosus.



7. Communicate with Your Partner


If you have a partner, open and honest communication about your condition is crucial. Discuss any concerns, fears, or limitations you may have due to Lichen Sclerosus. Together, you can find ways to maintain intimacy and ensure your partner understands and supports your needs.



8. Join Support Groups


Connecting with others who have Lichen Sclerosus can provide invaluable support and understanding. Consider joining support groups, either in person or online, where you can share experiences, exchange tips, and find emotional support from individuals who can relate to your journey.



9. Regular Check-ups


Regular follow-up appointments with your healthcare provider are essential to monitor your condition's progress and make any necessary adjustments to your treatment plan. These check-ups also provide an opportunity to address any concerns or questions you may have.



10. Stay Positive


Living with a chronic condition like Lichen Sclerosus can be challenging, but maintaining a positive mindset is crucial. Focus on the aspects of your life that bring you joy and fulfillment. Seek support from loved ones and healthcare professionals to help you navigate any difficulties that may arise.



Remember, everyone's experience with Lichen Sclerosus is unique, and what works for one person may not work for another. It is essential to listen to your body, advocate for your needs, and work closely with your healthcare team to develop a personalized management plan.


Diseasemaps
12 answers
Bij consequent smeren volgens een smeerschema kan LS onder controle komen en vaak blijven.

Posted Mar 12, 2017 by Anita Corte-Degen 1420
Not till the itching and pain goes away.

Posted Apr 7, 2017 by Beabow 1000
Yes, one can be happy with LS. Being your own advocate and proactive help a great deal. Especially with regard to finding a doctor who knows about this disease and is willing to work with you to create a treatment plan unique to your symptoms, while taking into considerations any concerns you may have. It’s so important to have a doctor who listens and will work with you.

Posted Oct 7, 2017 by Cindy 3050
Getting to a manageable stage is so important and figuring out what works best for you.
This is a physically and mentally painful disease and poorly acknowledged and understood in the medical world. Having support groups and knowing others that truely understand is greatly beneficial. Being able to talk to family and friends is also difficult because people quickly jump to the conclusion that you have got it through sexual activity and transferance. Ignorance is everywhere and so harmful.

Posted Oct 9, 2017 by annie-mcg 2000
Take it Day by day. Try everything you can find and see what works best for your body, every person is different. Just don’t give up on yourself

Posted Aug 25, 2018 by Tbreck 2500
You try to watch your diet and keep down stress. Find out what you can apply to the vulva area that will help with the symptoms.

Posted Oct 11, 2018 by Allicia 2500
Stay on your prescribed medications and use as directed by you physician, join a support group, take time for yourself.

Posted Apr 26, 2019 by Kelly 3100
Avoid soap containing products, use a good zero base moisturizer to wash and moisturize with, use natural lubricants such as YES. Insrillagel can be got on prescription to help alleviate pain, antihistamine can also help alleviate itching and burning especially if this is problematic at night.

Posted May 26, 2019 by Emma 3560
Accept it and move on

Posted Jun 12, 2019 by Ljstafford 1600
Take one day at a time. Learn what works for you by trial and error. Join a support group to learn by others accomplishments and failures. Treat this disease constantly. Due preventative maintenance. Remember movement causes friction, it may not cause you immediate discomfort but under the surface it could be building. Enjoy every moment to the best of your physical ability. Be Thankful for what YOU DO NOT HAVE. Remember it could be worse.
Educate your significant other as to what is happening with you and why intercourse may be seldom or non existent. Be creative

Posted Aug 22, 2019 by Diann 2500
See a good homeopath and you won't need to live with it.

Posted Jun 25, 2020 by Romana 200

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Just diagnosed last year. Symptoms have now started to become uncomfortable and are worse than I thought they were. Not taking any treatment. Dermatologist told me to only use the steroid cream if the symptoms were bad. discovered the facebook page 2...
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Diagnosed in 2011 at the age of 47, after the initial itching rash was resolved by Clobetasol, the only remaining symptom was painful intercourse. Then, a couple years later I started having mostly daily burning of the vulva, and irritation of the u...
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Diagnosed aged 40. Went into remission using clobesterone ointment. Began flaring slightly before periods as menopause began. Currently aged 53 and experiencing disappearance of architecture. Not much in way of itching thank goodness. No tears. I use...
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After a diagnosis of RA in 2001 the goal was to keep going. I finally took an early retirement in 2006. Chronic Fatigue soon became evident. In 2016 my symptoms began manifesting themselves. I thought it was a yeast infection. I thought I had an...
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Started itching April 2016 used various creams over the counter at chemist

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