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What is the prevalence of Lichen Sclerosus?

How many people does Lichen Sclerosus affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Lichen Sclerosus

Lichen Sclerosus is a relatively rare chronic skin condition that primarily affects women, although it can also occur in men and children. The exact prevalence of Lichen Sclerosus is uncertain due to underdiagnosis and misdiagnosis. However, it is estimated that the condition affects approximately 1 in 70 women. Lichen Sclerosus is characterized by white, patchy skin that is thin and itchy, commonly affecting the genital and anal areas. Early diagnosis and appropriate treatment are crucial in managing the symptoms and preventing complications. If you suspect you may have Lichen Sclerosus, it is important to consult a healthcare professional for proper evaluation and guidance.

Lichen sclerosus is a chronic inflammatory skin condition that primarily affects the genital and anal areas. It is more common in women, particularly postmenopausal women, but can also occur in men and children. The exact prevalence of lichen sclerosus is difficult to determine due to underdiagnosis and misdiagnosis. However, it is estimated that the condition affects approximately 1 in 70 women.


Lichen sclerosus is more prevalent in women, especially those who have reached menopause. It is believed that hormonal changes may play a role in the development of the condition. Additionally, lichen sclerosus can occur in men and children, although it is less common in these populations.


While lichen sclerosus can affect individuals of any age, it is most commonly diagnosed in middle-aged and older individuals. The condition is often characterized by white, patchy skin that is thinner than normal. It can cause itching, discomfort, and pain, and may lead to complications such as scarring and sexual dysfunction.


If you suspect you may have lichen sclerosus, it is important to seek medical evaluation and diagnosis. Early detection and appropriate treatment can help manage symptoms and prevent complications.


Diseasemaps
10 answers
Presumably, 1.7% of the population is said to have Lichen Sclerosus, with fewer than 2000,000 cases diagnosed each year. However, I believe it’s much more common than what is reported because not all seek out medical care due to shame and embarrassment, and many are misdiagnosed.

Posted Oct 8, 2017 by Cindy 3050
It affects more women than men and in general the statistics show that it is largely post menopausal. I don't think this is correct. I host a fb support page and my statistics do not reflect that thought. I believe the stats are 1 to 3% of the population. I believe this to be completely and drastically understated.

Posted Oct 9, 2017 by annie-mcg 2000
Lichen sclerosus affects mostly females, usually between the ages of 40 and 60 years. Cases involving younger females and males have also been identified in the medical literature in the United States, and cases have been reported that involve female children under the age of thirteen. Females are six times as likely to be affected as are males. Source: https://rarediseases.org/rare-diseases/lichen-sclerosus/

Posted Jan 9, 2018 by LBelle 1550
Fewer the 200,000 cases per year. It is mostly found in middle aged women near menopause however it is also found in children, teens, young woman and men

Posted Aug 25, 2018 by Tbreck 2500
Mostly menopausal women. Rare cases for men and children.

Posted Oct 11, 2018 by Allicia 2500
Not enough research on Lichen.

Posted Apr 26, 2019 by Kelly 3100
LS affects more women then men. It is estimated that LS affects roughly 1 in 100 to 1 in 1000 people. LS also affects children as young as 2 years old.

Posted May 26, 2019 by Emma 3560
Was considered a rare condition. But with more awareness and communication... it is more prevelant...open discussions

Posted Jun 12, 2019 by Ljstafford 1600
Approximately 1 in 30, mostly women. It is considered a RARE disease because there are apparently less than 200,000 person diagnosis in the USA yearly. The numbers are not accurate because of misdiagnosis, not seeing professionals to treat. Menopausal women in nursing home are not checked, how many are checked at public health centers. A few men are diagnosed. What is concerning is the number of ladies posting on the support groups that reportedly have young daughters and young grand children being affected. Then young women who state they have had the symptoms in early adulthood but not treated or confirmed until after child bearing.

Posted Aug 22, 2019 by Diann 2500

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Stories of Lichen Sclerosus

LICHEN SCLEROSUS STORIES
Lichen Sclerosus stories
Just diagnosed last year. Symptoms have now started to become uncomfortable and are worse than I thought they were. Not taking any treatment. Dermatologist told me to only use the steroid cream if the symptoms were bad. discovered the facebook page 2...
Lichen Sclerosus stories
Diagnosed in 2011 at the age of 47, after the initial itching rash was resolved by Clobetasol, the only remaining symptom was painful intercourse. Then, a couple years later I started having mostly daily burning of the vulva, and irritation of the u...
Lichen Sclerosus stories
Diagnosed aged 40. Went into remission using clobesterone ointment. Began flaring slightly before periods as menopause began. Currently aged 53 and experiencing disappearance of architecture. Not much in way of itching thank goodness. No tears. I use...
Lichen Sclerosus stories
After a diagnosis of RA in 2001 the goal was to keep going. I finally took an early retirement in 2006. Chronic Fatigue soon became evident. In 2016 my symptoms began manifesting themselves. I thought it was a yeast infection. I thought I had an...
Lichen Sclerosus stories
Started itching April 2016 used various creams over the counter at chemist

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I have a friend who works in disability approvals. They told me a % approval was granted to an applicant.

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