There are 204 people in the Lipedema map

Lipedema diet

Is there a diet which improves the quality of life of people with Lip...

Prevalence of Lipedema

What is the prevalence of Lipedema?

Couple and Lipedema

Is it easy to find a partner and/or maintain relationship when you hav...

Lipedema causes

Which are the causes of Lipedema?


Stories of Lipedema

STORY
Lipedema stories
My objective is to create awareness about lipoedema treatment by showing the journey of my own treatment at the Hanse Klinik in Luebeck Germany. I was diagnosed with lipoedema stage 2 in September 2015 by Professor Mortimer of St George's Hospit...
Lipedema stories
I have primary lymphedema and secondary lipedema. Probably had it all my life. I notice now in pictures from the time i was 3 my left leg was always bigger. No one ever noticed or said anything. Drs just kept telling me to lose weight. Never could. T...
Lipedema stories
I have lipedema since my teenage years but the diagnosisin my lowerlegs was 6 years ago. Mine upper legs was since this year. I can't walk for a day without the pain in my legs. I decided I go for liposuctions. Here in the Netherlands you have to pay...
Lipedema stories
My story is as long as I have had the disease. I know now that I was nine when it started. I have always had very big legs. I had been on diets and starvation diets for 55 years. Nothing worked. I now know there is a name to what is wrong and a way t...
Lipedema stories
diagnosed with lymphoedema 9 years ago, re-diagnosed with lipoedema 8 weeks ago. Having surgery Feb 2017. 

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Lipedema forum

QUESTION
Question 342
how can I find treatment centers to help me with my lipedema of the legs and ankles

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Statistics of Lipedema

9 people with Lipedema have taken the SF36 survey. Mean of Lipedema is 1284 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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