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What is the prevalence of Lipedema?

How many people does Lipedema affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Lipedema

Lipedema is a chronic condition characterized by an abnormal accumulation of fat cells, primarily in the lower body, often affecting women. While exact prevalence rates are challenging to determine due to underdiagnosis, it is estimated that 11% to 15% of adult women worldwide may be affected by lipedema. This condition is often misdiagnosed as obesity or lymphedema, leading to significant physical and emotional distress for those affected. Early recognition and proper management are crucial for improving the quality of life for individuals with lipedema.



Lipedema is a chronic condition characterized by an abnormal accumulation of fat cells, primarily in the lower body, such as the hips, thighs, and buttocks. It predominantly affects women, with estimates suggesting that it affects between 11% and 15% of adult women worldwide. However, due to underdiagnosis and misdiagnosis, the true prevalence of lipedema may be higher than reported.

Lipedema often begins during puberty or other hormonal changes, and it tends to worsen over time. The exact cause of lipedema is still unknown, but it is believed to have a genetic component. It is often misdiagnosed as obesity or lymphedema, leading to delayed or inadequate treatment.

The impact of lipedema on individuals can be significant, both physically and emotionally. The excess fat accumulation can cause pain, tenderness, and easy bruising. It can also lead to reduced mobility and body image issues, affecting the quality of life.

Early recognition and proper diagnosis are crucial for managing lipedema effectively. Treatment options include lifestyle modifications, compression therapy, physical therapy, and surgical interventions like liposuction.

It is important to consult a healthcare professional for an accurate diagnosis and appropriate management of lipedema.
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3 answers
Lipedema is believed to affect 11% of women. That number may be understated due to the lack of physicians who are diagnosing the condition. Some men also get Lipedema but they usually have symptoms of other gynoid disorders. Lipedema tends to start in adolescence or following hormonal fluctuations brought on by pregnancy, peri menopause, menopause and hysterectomy.

Posted Jan 14, 2019 by Lipedemusikim 2500
fat legs and arms prevalence of lipedema

Posted Jan 17, 2019 by mkokkinouboege 2530

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LIPEDEMA STORIES
Lipedema stories
My objective is to create awareness about lipoedema treatment by showing the journey of my own treatment at the Hanse Klinik in Luebeck Germany. I was diagnosed with lipoedema stage 2 in September 2015 by Professor Mortimer of St George's Hospital L...
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I have primary lymphedema and secondary lipedema. Probably had it all my life. I notice now in pictures from the time i was 3 my left leg was always bigger. No one ever noticed or said anything. Drs just kept telling me to lose weight. Never could. T...
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When you are eating properly, super active, exercising and still you legs and thighs expand.. I started noticing in 1988. Just thought it was middle age spread. Now I walk with a cane but I was  diagnosed  two years ago through my work with Lymphed...
Lipedema stories
I have lipedema since my teenage years but the diagnosisin my lowerlegs was 6 years ago. Mine upper legs was since this year. I can't walk for a day without the pain in my legs. I decided I go for liposuctions. Here in the Netherlands you have to pay...
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My story is as long as I have had the disease. I know now that I was nine when it started. I have always had very big legs. I had been on diets and starvation diets for 55 years. Nothing worked. I now know there is a name to what is wrong and a way t...

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Lipedema forum
how can I find treatment centers to help me with my lipedema of the legs and ankles

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