Long term care is good, new medications are always coming on line as the condition is further understood. Regular scans are essential and regular trips to cardiologists and other specialises regularly are a must
I have a clinical diagnosis of Loeys-Dietz Syndrome as there has been no gene match up for me yet. I also really do not have any family to help search for a gene as those who probably were affected by it are no longer alive and I did not have any kid...
For details on the Aortic Dissection Awareness Week Events, please click Here
For information about the speakers for the Medical Information day, please click Here.
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The John Ritter Foundation for Aortic Healt...