I was diagnosed shortly after my father passed awayin 2005. Several years after i had an ICD put in, becasue i began to have some episodes of passing out and my life has never been better. I was so depressed at first and scared, ...
23 years old when I got my pacemaker dufibulater. I remember my first black out as a teen. I was scared and depressed.
I'm now a married mother of 2 beautiful children. We will be getting a genetic test completed in 2016.
I will add more info...
In 2014 I was diagnosed with Long qt syndrome, i was waiting for my school bus, i quickly felt unwell and my skin colour went white, i became light headed and sick. i suddenly collpase on the floor i rushed into hospital i had a ecg and it showed i h...
3 people with Long QT Syndrome have taken the SF36 survey. Mean of Long QT Syndrome is 847 points (24 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey