Help us to help more people
  2. Long QT Syndrome
  3. Advice
slow down your life
by Boris
to join Long QT support groups on Facebook
by Katrin with Arvid (male, 13 years old)
regular exercise
by Geni
Receiving care from one of the experts in Long QT, Dr. Michael Ackerman from the Mayo Clinic, has helped me.
by Chris
Chatting to my sister and friends
by Denise
Metroprolol
by Ida Helene Turøy
keep my diet
by Claudia Diaz
Avoiding alcohol
by Brooke
Hydration
by Laura
Hydration
by Laura
Hydration
by Laura
My ICD saved my life
by Melissa
pipi
by Alex
Art
by Julie Calvert
Having a supportive husband
by Christina
Finding out as much, but the right information about the condition has helped me to deal and help with it all.
by Kim
Icd implant and betas
by Rebecca
Having an ICD
by Paula
The resilience of my son since he was diagnosed
by Kylie
A supportive husband and family
by Jess
enjoy life never doubt yourself just because of your condition.
by Nicole
i have a tattoo of my heart beat to remind me of how far ive come from first blacking out.
by Shann
minium stress and much sleep
by Fríður
I also have an auto immune disease called Lupus
by Lisa
Good nightsleep
by Guðrún
Having an ICD which has saved my life
by Paula
Struggle significantly since but try to have a positive outlook
by Dawn
Fun
by Dino
Our family is very supportive of each other. Having lost our oldest son to LQTS we encouage each other to live the best lives we can with this condition.
by Nancy Walker
J ai 2 enfants : Esteban décédé pendant la grossesse et micaela née en juin 2015
by Coralie
I'm the same person as I was before diagnosed
by Lynnette Armstrong
chocolate :p
by Bouchra
portable AED always with me
by Boris
to get information and support from the SADS Foundation
by Katrin with Arvid (male, 13 years old)
healthy diet full of protein and healthy fats
by Geni
I have two sons that have this disease, and having a plan in place on how to deal with it, has helped me.
by Chris
Healthy living
by Ida Helene Turøy
drink water
by Claudia Diaz
Healthy diet & exercise
by Brooke
Spironlactone
by Laura
Spironlactone
by Laura
Spironlactone
by Laura
The fight is never over learning to just live life to the fullest
by Melissa
algp
by Alex
TPN
by Julie Calvert
Keeping a positive frame of mind has made a huge difference
by Christina
This site has helped so much, knowing my family are not alone and so much help and surport . Thank you x
by Kim
My kids
by Rebecca
Try and enjoy life within the parameters of keeping me safe
by Paula
The support of our family
by Kylie