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What is the prevalence of Lymphangiomatosis?

How many people does Lymphangiomatosis affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Lymphangiomatosis

Lymphangiomatosis is a rare disorder characterized by the abnormal formation of lymphatic vessels. It affects various organs and tissues throughout the body. Due to its rarity, the prevalence of lymphangiomatosis is not well-established. However, it is estimated to occur in less than 1 in 1 million individuals. This condition can affect people of all ages, but it is most commonly diagnosed in children. Lymphangiomatosis can cause a range of symptoms and complications, depending on the organs involved. Early diagnosis and appropriate management are crucial for improving outcomes in affected individuals.



Lymphangiomatosis is a rare disorder characterized by the abnormal formation of lymphatic vessels. It is considered an extremely rare condition, making it difficult to determine its exact prevalence. Due to its rarity, there is limited data available on the number of individuals affected by lymphangiomatosis worldwide.


Although precise prevalence figures are lacking, it is estimated that lymphangiomatosis occurs in approximately 1 in 1.2 million individuals. This rarity contributes to the challenges faced by healthcare professionals in diagnosing and treating the condition.


While lymphangiomatosis can affect individuals of any age, it is most commonly diagnosed in children and young adults. The disorder can manifest in various parts of the body, including the bones, lungs, spleen, and other organs. Symptoms may vary depending on the location and extent of the lymphatic abnormalities.


Given the scarcity of cases, it is crucial for healthcare providers to collaborate and share knowledge to improve understanding and management of lymphangiomatosis. Ongoing research and advancements in medical technology offer hope for better diagnosis, treatment, and support for individuals affected by this rare condition.


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