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What is the prevalence of Madelung Deformity?

How many people does Madelung Deformity affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Madelung Deformity

Madelung Deformity is a rare congenital condition characterized by abnormal growth of the wrist bones, resulting in a deformity. It predominantly affects females during adolescence, with a prevalence estimated to be around 1 in 25,000 individuals. The condition is often associated with certain genetic disorders, such as Turner syndrome. Madelung Deformity can cause pain, limited range of motion, and cosmetic concerns. Treatment options include conservative management, such as physical therapy, or surgical interventions to correct the deformity and alleviate symptoms.



Madelung Deformity is a rare congenital condition that affects the development of the wrist and forearm. It is characterized by abnormal growth of the radius and ulna bones, resulting in a deformity that can cause pain, limited range of motion, and cosmetic concerns.



The prevalence of Madelung Deformity is not well-documented, but it is estimated to occur in approximately 1 in 26,000 individuals. It is more commonly observed in females, with a female-to-male ratio of about 3:1. The condition typically manifests during adolescence, with the growth spurt triggering the deformity.



While Madelung Deformity is considered rare, it is important to note that the prevalence may vary across different populations and geographic regions. Additionally, some cases may go undiagnosed or misdiagnosed, leading to potential underestimation of its true prevalence.



Early detection and intervention are crucial in managing Madelung Deformity. Treatment options may include physical therapy, bracing, and in severe cases, surgical correction. It is recommended that individuals experiencing symptoms or suspecting they may have Madelung Deformity consult with a healthcare professional for proper evaluation and guidance.


Diseasemaps
7 answers
One in 700,000 apparently have Madelungs Deformity but it's getting more common as being wrongly diagnosed as more common complaints such as arthritis and carpal tunnel syndrome.

Posted Oct 13, 2017 by Andrea 3910
percentage weet ik niet maar het komt meer bij vrouwen voor

Posted Oct 13, 2017 by Dia Na 2500
It presents is in mostly young females. However some males do have it.

Posted Oct 23, 2017 by Haylee 2000
I've read articles that its 1 every 2,000 but I've also read 1 in every 800,000. I think some people just don't know they have it and the numbers aren't accurate yet. It affects more woman than men just because its a mutation on the X-chromosome and it affects more children and teens because their bones are growing.

Posted Nov 5, 2017 by Keyton 4110
Well it’s more common in women then in men like me and you usually start to notice symptoms during childhood

Posted Mar 16, 2019 by Nathan 3651
Madelungs deformity affects 1 in 850,000

Posted Sep 29, 2019 by Amy 13500

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World map of Madelung Deformity

Find people with Madelung Deformity through the map. Connect with them and share experiences. Join the Madelung Deformity community.

Stories of Madelung Deformity

MADELUNG DEFORMITY STORIES
Madelung Deformity stories
I broke my arm when I was about 4 or 5 and I went about a week without knowing I had but when I finally went to the doctor they x-rayed it and questioned my parents and I if I had broken it before. They saw in the x-ray that I had previously broken i...
Madelung Deformity stories
I was about 13 years old when I was diagnosed with Madelung Deformity. I was told by my doctor that there was nothing to do, but that they are doing some research about the disease. As I didn’t have that much pain to affect my everyday life, I went...
Madelung Deformity stories
My daughter thought she broke her wrist at soccer. Immediately we noticed the jutting forward of ulna and took her for an X-ray. Dr. Says it’s not broken while I’m looking at an X-ray of a completely curved and bowed radius. I responded, it’s n...
Madelung Deformity stories
I was never good at sports as a kid. A vibration when hitting a bat to a ball, would send pain up thru my wrists, forearms and elbows. I could not pull myself up to a bar in phys-ed, push ups hurt my wrists so bad, but I was forced to participate. ...
Madelung Deformity stories
I noticed some pain in my wrist in 2016 so I went to the doctors and they couldn’t figure out what the problem was even after many tests. Finally in 2018 a doctor finally knew that I had madelung’s deformity in both wrists. I’m still going thro...

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Madelung Deformity forum

MADELUNG DEFORMITY FORUM
Madelung Deformity forum
ive looked all over the internet and I’ve found nothing on how rare it is. So how many people are diagnosed with it? What are the chances that a male will have it?
Madelung Deformity forum
say for example I fell and I broke my wrist, should I let my doctor know about my condition? Do they have to treat it differently because of my condition?

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