Is it easy to find a partner and/or maintain relationship when you have Maple syrup urine disease?
People with experience in Maple syrup urine disease give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Maple syrup urine disease. What are the possible difficulties in having a relationship?
MSUD is a non-factor in my relationship with my husband. He's very aware of it and has become quite knowledgeable but it's not something that has affected how we maintain things. Looking for a partner when you have MSUD is really no different than if someone did not have the disease. If the person you are with puts a tremendous focus on your disease or makes you feel bad about it, that isn't the person for you. Living life normally is totally possible (as long as you follow your restrictions) and that should have no bearing on your relationship.
Oliver was fiagnosed at 2 weeks, currently doing great!
here's our story: https://janybc.wordpress.com/2016/05/09/on-how-to-raise-my-son-olivers-msud-%E2%9D%A4%EF%B8%8F-2/
Actualmente mi bebé tiene 4 meses, al mes de nacida fue diagnosticada con jarabe de maple, no presentaba ningún síntoma salvo el resultado del tamiz, se le hizo también el ampliado y una espectometria de masas las cuales fueron positivas, la ...
Hi all
my son has been diagnosed with Classic MSUD
Now he is 4 years old and he is going fine with the restrict dietary and frequently amino acids test
we are thinking about liver transplantation however our don's doctor didn't encourage us to do ...
My son Paul was born on 5th December 1988 fit and healthy, or so we thought. On 16th December he was diagnosed with acute maple syrup urine disease. He spent the first 3 months of his life in our local children's hospital. The first 3 weeks were on t...