A Marcus Gunn Syndrome interview .

Antonia155's interview


How did all start?

I was born with this

Do you already have a diagnosis? How long did it take you to get it?

Yes. As a very young child.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Eye sugery

What has been the most useful thing for you so far?

Getting older and accepting it

What have been your biggest difficulties?

Embarrassment

How has your social and family environment reacted? Have your social or family relationships changed?

They haven’t changed but no one ever mentions it

What things have you stopped doing?

Nothing

What do you think about the future?

I’d like to have a face lift but have no idea whether or not there would be additional risks to me because of Marcus Gunn

So far, which years have been the best years in your life? What have you done during them?

My 30s. Went to university and met a man I loved

What would you like to do if you didn’t have your condition?

At the minute, have a face lift - I know that’s vain

If you had to describe your life in a sentence, what would it be?

I don’t know how to do this. I travel a lot and do the best I can

Finally, what advice would you give to a person in a similar situation?

Accept it- there’s nothing else you can do. Easily said I know.


Oct 15, 2020

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