Stories of Marfan Syndrome

STORY
Marfan Syndrome stories
After taking a decongesant with a stimulant my doctor noticed my chest moving up and down with my heartbeat. I was visiting her office for an ear infection. She performed an EKG. She then suggested a Holter Test. The Holter Test showed an ST Depressi...
Marfan Syndrome stories
AD at Februar 2010 strong survivor
Marfan Syndrome stories
Hi Everyone!I want to know all of you, at least in West Central Florida, USA.37 years oldInsurance through ACA, single planPart time work graphics designer making barely a few dollars over poverty to activate ACAFlorida is a "dead zone" state where $...
Marfan Syndrome stories
Hi, my name is amber and I have Marfan Syndrome. I was diagnosed when I was 5yrs old. My father had it and he had passed away from it. It was been a adventure dealing with this my whole life but I have met some great people along in my journey.

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Marfan Syndrome forum

QUESTION
Question 194
Hello everybody,  my son suffers marfan syndrome. At the moment he only wears glasses, but we contemplate the possibility of surgery... after the operation, the eyes syntomps can get worse?  thanks for the advice

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Statistics of Marfan Syndrome

9 people with Marfan Syndrome have taken the SF36 survey. Mean of Marfan Syndrome is 1227 points (34 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

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Marfan Syndrome

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