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Marfan Syndrome
Advice
Advice of Marfan Syndrome
I Never let marfans win
by Vickisticki
Accupuncture prevent my condition from worsening
by Bonita
Accupuncture prevent my condition from worsening
by Bonita
exercising regular
by Kelly
I really startet to live my life to the full. after getting diagnosed 14/10-17.
by Henrik
La voglia di vivere
by Andrea
I found the love of my life
by Miranda
Practicar deporte de forma controlada y regular
by Antonio
my wife/family
by steve
Not becoming Vegan!
by Nigel Powis
Positive mind
by Tdittmann
Change of lifestyle after an aortic aneurism in 2013.
by Lu
helping others
by Christian Larsen
My dog, keeps me somewhat active
by Vaughnie
Exercise
by Ameigh
Icewater for help with palpitations.
by Jesse
Balanced lifestyle - time with family and friends, not work-centric
by Ewe Lin Loo
Exercise in moderation and being positive
by Rosemary Latto
My extremely supportive boyfriend
by Jenny
T.E.N.S. unit
by Carly
Medication
by S Roby
I accept my limitations but don't let them limit my ability to enjoy life.
by Jean
The supportof my family.
by Karen Brooks
Enjoy your life
by Birgit Ottilie Madsen
Mantenerme informado del Sindrome
by Luis Mora
I have 2 beautiful grandchildren.
by Lesley Harl
One day at a time
by Esmeralda
Change of lifestyle after an aortic aneurism in 2013.
by Lu
Taking pharmaceutical grade supplements
by Terese Galvin
Surgery with Dr. Feigenbaum 3 weeks ago (10-14-15) I know it's still early but I can feel a big difference already, listening to Docs orders!
by Alicia Butler
Losartan and Atenelol, which I hope, will protect my aorta
by Matt
Quitting smoking
by Alex
Information about the syndrome; the more I knew, more in control I felt.
by Giedrė
I make a point to get adequate amounts of sleep to counteract the Atenelol.
by Melody
Drinking wather
by
Eating properly- high protein neals in the morning, and eating good fats throughout the day, aa well as keeping hydrated.
by Geoff
Accupuncture
by Jamie
Wearing tennis-shoes to sleep stops the toe cramps while working on circulation.
by Don Smith
writing poetry
by Andy
Talking to others, that have my disease
by Karen G. Friedhofer Thompson
Most importantly, I am a Christian and my faith sustains me that I will be ok.
by Vada Powell
Practicar meditación como estrategia para manejo de dolor.
by Sara
Annual cardiac monitoring and when necessary, aortic graft surgery at Barts Heart Centre saved my life
by Gareth
Prioritise / Priorizar
by Mariana
Pensar positivo. No pasa nada =)
by Alberto Vilchis
Como con poca sal y muy sano
by Helena
My friends keep me happy too
by Vickisticki
staying positive and staying focussed.
by Kelly
La consapevolezza di essere normale. Con un difetto genetico.
by Andrea
Do not worry to much...life is to short to worry
by Miranda
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