Story about Marfan Syndrome .

A Marfan Syndrome story

Dec 28, 2015


Long family history of Marfans with over 13 people in my family who have it.  Dad passed away in '87 and i was always told I only have symptoms but no official diagnosis. My daughter had very typical Marfan features then I had genetic testing done in 2012 that confirmed me and my daughter positive for Marfans. My other 2 kids are not. 

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