Story about Marfan Syndrome .

OgreDon Smith

Dec 29, 2015

By: Don Smith


Hi Everyone!

I want to know all of you, at least in West Central Florida, USA.

37 years old

Insurance through ACA, single plan

Part time work graphics designer making barely a few dollars over poverty to activate ACA

Florida is a "dead zone" state where $0-$11500/year is not elligible for Medicare or ACA

Spend all my time remotely cleaning/fixing/rescuing computers for people who need them

Friends with Christians, Jews, Muslims, Transexuals, Gays, all skin colors, everything in between.

ADD makes it hard for me to focus on studying anything useful, and I can't take any medication for it because of my heart meds.

GI absorption issues and a few effects that might be like Ehlers-Danlos.

Long arms, joints that won't straighten, pectus carinatum, massive acid-burning like muscle imflammation that goes away with CoEnzyme Q10, weak legs and muscle atrophy my parents say started when doctors put me in braces to stop me sitting W-style. Overweight, 320lbs/146kg/23st, size 15 narrow feet (~13"/33cm long).  Dislocated eye lenses fixed in 2012 with 40+year acrylic lenses. 2001 David valve sparing when aorta was 4.7+.  Massive lung burn/chest pain happens when I change air environment, but then calms down after a few minutes.  Usually have to manually breathe while walking, and can't stand in one place long at all, but perfectly fine working long hours sitting.

I encourage anyone to contact me in Facebook at Ogredon Smith

But I have many friends with very strange humor and political views, so please do not hesitate to unfriend if my facebook page offends you even if we keep in touch through chat.

Take care! Happy New Years!
Don Smith

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