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Living with Marfan Syndrome. How to live with Marfan Syndrome?

Can you be happy living with Marfan Syndrome? What do you have to do to be happy with Marfan Syndrome? Living with Marfan Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Marfan Syndrome

Living with Marfan Syndrome
4 answers
Marfan syndrome doesn't define who you are. I am happy every day. Why? Because I am alive!

Posted Feb 27, 2017 by Griet 1000
i really just try to live life like every day matters. i try to get the most of everyting every goal i set. is being Done.

Posted Oct 16, 2017 by Henrik 1600
Translated from spanish Improve translation
Of course you can be happy, there are even well-known characters with syndrome of Marfan.
Obviously depend on the degree of impairment to your mobility, or your vision and, above all, your attitude and those around you.
You can even be a mother.

Posted Apr 15, 2017 by Carola 1360
Translated from spanish Improve translation
Of course, yes.
It all depends on the inside of the people
It is not something that causes a disease.

Posted Oct 5, 2017 by Helena 2550

Living with Marfan Syndrome

Marfan Syndrome life expectancy

What is the life expectancy of someone with Marfan Syndrome?

5 answers
Is Marfan Syndrome contagious?

Is Marfan Syndrome contagious?

4 answers
Celebrities with Marfan Syndrome

Celebrities with Marfan Syndrome

Is Marfan Syndrome hereditary?

Is Marfan Syndrome hereditary?

5 answers
ICD9 and ICD10 codes of Marfan Syndrome

ICD10 code of Marfan Syndrome and ICD9 code

3 answers
Natural treatment of Marfan Syndrome

Is there any natural treatment for Marfan Syndrome?

4 answers
Marfan Syndrome symptoms

Which are the symptoms of Marfan Syndrome?

9 answers
History of Marfan Syndrome

What is the history of Marfan Syndrome?

2 answers

World map of Marfan Syndrome

Find people with Marfan Syndrome through the map. Connect with them and share experiences. Join the Marfan Syndrome community.

Stories of Marfan Syndrome

MARFAN SYNDROME STORIES
Marfan Syndrome stories
After taking a decongesant with a stimulant my doctor noticed my chest moving up and down with my heartbeat. I was visiting her office for an ear infection. She performed an EKG. She then suggested a Holter Test. The Holter Test showed an ST Depressi...
Marfan Syndrome stories
Hi Everyone! I want to know all of you, at least in West Central Florida, USA. 37 years old Insurance through ACA, single plan Part time work graphics designer making barely a few dollars over poverty to activate ACA Florida is a "dead zone" sta...
Marfan Syndrome stories
AD at Februar 2010 strong survivor
Marfan Syndrome stories
Hi, my name is amber and I have Marfan Syndrome. I was diagnosed when I was 5yrs old. My father had it and he had passed away from it. It was been a adventure dealing with this my whole life but I have met some great people along in my journey.
Marfan Syndrome stories
My story may be quite different than most.  I was adopted when I was 4 months old.  Growing up, I didn't gain weight, had pain with my feet and legs, and started wearing glasses at age 8.  My adoptive parents took me to doctors all my life.  The ...

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Marfan Syndrome forum

MARFAN SYNDROME FORUM
Marfan Syndrome forum
Hello everybody,  my son suffers marfan syndrome. At the moment he only wears glasses, but we contemplate the possibility of surgery... after the operation, the eyes syntomps can get worse?  thanks for the advice

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