Stories of Mastocytosis and MCAS

Mastocytosis and MCAS stories
My name is Jennifer. I'm 39 years old and am finally in love and feel like I found someone I want to spend my life with. The only problem is I have Chiari. I also recently found I most likely have EDS, POTS, MCAS, and IC. These are a lot of abbreviat...
Mastocytosis and MCAS stories
I was fist diagnosised with systemic mastocytoisis. A few years later and several medicines added to control my disease I saw a different doctor that was not certain of the first diagnosis. She wanted me to have a bone marrow biopsy to confirm.  ...
Mastocytosis and MCAS stories
I will update complete story today after my allergy appointment. Feeling excited and nervous all at once. 
Mastocytosis and MCAS stories
I have had asthma and eczema since being a baby. .in fact. .I was born with urticaria.. What i perceived as normal I learnt later in life was not. Fast forward ..allot of strange symptoms. .allot of diagnosis. .allot of searching for answers.. Und...
Mastocytosis and MCAS stories
Medical/personal blog about living life with multiple rare and chronic illnesses:

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Mastocytosis and MCAS forum

Question 366
I would like to know how mastocytosis or MCAS is diagnosed. Are there lab tests or any other test to diagnose it? I'm from Europea and I am diagnosed with chronic fatigue syndrome, postural orthostatic tachycardia syndrome and irritable bowel sy...
Question 376
Anyone see a good doctor that treats mast cell disorders in or around GEORGIA?? Please share your doctor's name, even if you are in a nearby state! I've seen a hematologist in Gainesville, FL, and am being treated for SM due to having all the symptom...

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Statistics of Mastocytosis and MCAS

107 people with Mastocytosis and MCAS have taken the SF36 survey. Mean of Mastocytosis and MCAS is 1092 points (30 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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