There are 378 people in the Mastocytosis and MCAS map

Mastocytosis and MCAS diagnosis

How is Mastocytosis and MCAS diagnosed?

Living with Mastocytosis and MCAS

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Mastocytosis and MCAS jobs

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Stories of Mastocytosis and MCAS

STORY
Mastocytosis and MCAS stories
I was fist diagnosised with systemic mastocytoisis. A few years later and several medicines added to control my disease I saw a different doctor that was not certain of the first diagnosis. She wanted me to have a bone marrow biopsy to confirm.  ...
Mastocytosis and MCAS stories
I will update complete story today after my allergy appointment. Feeling excited and nervous all at once. 
Mastocytosis and MCAS stories
I have had asthma and eczema since being a baby. .in fact. .I was born with urticaria.. What i perceived as normal I learnt later in life was not. Fast forward ..allot of strange symptoms. .allot of diagnosis. .allot of searching for answers.. Und...
Mastocytosis and MCAS stories
I was sitting in the tub on January 2010 evening When all of a sudden I couldn't breathe . I stood up And I turned blood red from head to toe .They had to call an ambulance I was in full-blown anaphylactic shock And they didn't know if I was going to...
Mastocytosis and MCAS stories
Born a healthy baby girl. Consulted a dermatologist and went for an ECG to rule out suspected Leopard spots. (phew) Mother waited till I was 24months old and went to do a skin biopsy to get a dianogistic... From then, I had been following up with ...

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Mastocytosis and MCAS forum

QUESTION
Question 366
I would like to know how mastocytosis or MCAS is diagnosed. Are there lab tests or any other test to diagnose it? I'm from Europea and I am diagnosed with chronic fatigue syndrome, postural orthostatic tachycardia syndrome and irritable bowel sy...
Question 376
Anyone see a good doctor that treats mast cell disorders in or around GEORGIA?? Please share your doctor's name, even if you are in a nearby state! I've seen a hematologist in Gainesville, FL, and am being treated for SM due to having all the symptom...

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Statistics of Mastocytosis and MCAS

107 people with Mastocytosis and MCAS have taken the SF36 survey. Mean of Mastocytosis and MCAS is 1092 points (30 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Mastocytosis and MCAS