I was fist diagnosised with systemic mastocytoisis. A few years later and several medicines added to control my disease I saw a different doctor that was not certain of the first diagnosis. She wanted me to have a bone marrow biopsy to confirm. ...
I have had asthma and eczema since being a baby. .in fact. .I was born with urticaria..
What i perceived as normal I learnt later in life was not.
Fast forward ..allot of strange symptoms. .allot of diagnosis. .allot of searching for answers..
Und...
I was sitting in the tub on January 2010 evening When all of a sudden I couldn't breathe . I stood up And I turned blood red from head to toe .They had to call an ambulance I was in full-blown anaphylactic shock And they didn't know if I was going to...
Born a healthy baby girl.
Consulted a dermatologist and went for an ECG to rule out suspected Leopard spots. (phew)
Mother waited till I was 24months old and went to do a skin biopsy to get a dianogistic...
From then, I had been following up with ...
Anyone see a good doctor that treats mast cell disorders in or around GEORGIA?? Please share your doctor's name, even if you are in a nearby state! I've seen a hematologist in Gainesville, FL, and am being treated for SM due to having all the symptom...
I would like to know how mastocytosis or MCAS is diagnosed. Are there lab tests or any other test to diagnose it? I'm from Europea and I am diagnosed with chronic fatigue syndrome, postural orthostatic tachycardia syndrome and irritable bowel sy...
124 people with Mastocytosis and MCAS have taken the SF36 survey. Mean of Mastocytosis and MCAS is 1126 points (31 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
