it's the neverending story of Cindy

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I WAS SITTING IN THE TUB ON JANUARY 2010 EVENING WHEN ALL OF A SUDDEN I COULDN'T BREATHE . I STOOD UP AND I TURNED BLOOD RED FROM HEAD TO TOE .THEY HAD TO CALL AN AMBULANCE I WAS IN FULL-BLOWN ANAPHYLACTIC SHOCK AND THEY DIDN'T KNOW IF I WAS GOING TO SURVIVE. GOT TO THE HOSPITAL GAVE ME MEDS SLOWLY STARTED TO RESPOND . NEVER HAD ANYTHING LIKE THIS HAPPEN TO ME BEFORE. SO WE JUST BLEW IT OFF TOO MAYBE IT WAS THE BUBBLE BATH PERHAPS SOME LOTION WHO KNOWS.SO THEN A FEW WEEKS LATER I WAS AT WORK AND HAD ANOTHER EPISODE. THEN A FEW WEEKS LATER I WAS EATING FRENCH TOAST AND HAVE ANOTHER EPISODE.THEY WERE HAPPENING MORE FREQUENTLY I WAS GETTING SCARED. SO I CALLED MY FAMILY DOCTOR HE RECOMMENDED ME TO  ALLERGIST. SO I WENT AND MET WITH THE ALLERGIST THEY DID A FEW TESTS CAME BACK IN WITH THREE OTHER DOCTORS. THEN THEY BEGAN TO TELL ME THEY THOUGHT I HAD CARCINOID CANCER AND I POSSIBLY HAD ABOUT 6 MONTHS TO 12 MONTHS TO LIVE. SO THEY REFER ME TO LOUISVILLE ONCOLOGY.THAT'S WHERE I MET WITH DR. PATRICK WILLIAMS. SEVERAL TESTS AND EVEN A FULL BLOWN ATTACK IN THE OFFICE THE FIRST DAY I MET HIM. AFTER MANY TESTS AND THE BONE MARROW BIOPSIES SCANS URINALYSIS BLOOD WORK. I WAS GIVING THE DIAGNOSIS OF SYSTEMIC MASTOCYTOSIS. HAVE NOT RESPONDED TO 8 DIFFERENT ROUNDS OF CHEMO. I'VE BEEN WAITING FOR A STEM CELL TRANSPLANT SINCE MAY OF 2011.SINCE MY DIAGNOSIS I HAVE BEEN TREATED FOR ENDOCARDITIS. I HAD A MASS  ON MY RIGHT KIDNEY REMOVED. FULL BLOWN ANAPHYLACTIC ATTACKS WITH MY MENSTRUAL CYCLE SO A HYSTERECTOMY WAS DONE(HAD BOTH SURGERIES WITHIN 3 WEEKS OF EACH OTHER) BOY WAS I IN PAIN.. ALSO FEBRUARY 2012 THEY FOUND TWO TUMORS AND A TORN LIGAMENT ACROSS MY RIGHT KNEE .AND YET ANOTHER  SURGERY.I NEVER DREAMED THIS DIAGNOSIS WOULD BE SO LIFE-THREATENING/CHANGING .THE FIRST BMB SHOWED 3% IN MARROW. LAST BMB SHOWS 56% .THE MASTOCYTOSIS HAS INFILTRATED MY LUNGS MY LIVER AND MY KIDNEYS/STOMACH. EACH DAY IS A CHALLENGE BUT I REFUSE TO GIVE UP STAYING POSITIVE TILL THE END!   IT DOES GET HARD I'VE BEEN HOSPITALIZESD OVER 600 DAYS SINCE 2011. COUNTLESS SURGERIES/SPINAL TAPS .NUMEROUS BLOOD TRANSFUSION'S ,POTASSIUM, FLUIDS AND THE MEDS .WOW IT REALLY IS A NEVER ENDING STORY IT SEEMS.