Join the map
Do the survey
There are 36 people in the McCune Albright map
Stories of McCune Albright
Dear All , I discovered my disease when i was 19 years old. I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull. AFter a few years , unfortunately I&nbs...
7/29/16, 8:40 AM by
FD AND MAS
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.
6/18/16, 10:58 PM by
Tell your story and help others
Tell my story
McCune Albright forum
DOES ANYONE ELSE IN THE WORLD HAVE CCHS AND MCCUNE ALBRIGHT SYNDROME?
4/18/16, 7:40 AM by
Ask a question and get answers from other users.
Ask a question
Statistics of McCune Albright
people with McCune Albright have taken the SF36 survey. Mean of McCune Albright is 1640 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
Take the SF36 Survey
Find your symptoms soulmates
From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.
Add your symptoms and discover your soulmates map
Join the map