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There are 45 people in the McCune Albright map
What is the life expectancy of someone with McCune Albright?
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Stories of McCune Albright
Dear All , I discovered my disease when i was 19 years old. I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull. AFter a few years , unfortunately I&nbs...
7/29/16, 8:40 AM by
FD AND MAS
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.
6/18/16, 10:58 PM by
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McCune Albright forum
DOES ANYONE ELSE IN THE WORLD HAVE CCHS AND MCCUNE ALBRIGHT SYNDROME?
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Statistics of McCune Albright
people with McCune Albright have taken the SF36 survey. Mean of McCune Albright is 1820 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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