Dear All ,
I discovered my disease when i was 19 years old.
I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull.
AFter a few years , unfortunately I discovered have it...
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.
