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Is it easy to find a partner and/or maintain relationship when you have Medullary Sponge Kidney?

People with experience in Medullary Sponge Kidney give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Medullary Sponge Kidney. What are the possible difficulties in having a relationship?

Couple and Medullary Sponge Kidney
5 answers
No you have to find someone who is willing to fight for you and pick up the slack when you are in so much pain that it hurts to even breathe

Posted May 21, 2017 by Brooke 2100
It may be easy or difficult to find/maintain a relationship. I am not sure that this disease would affect this at all. It would depend on the patient and how the disease affects the patient.

Posted May 24, 2017 by Angel 2290
No. Unfortunately not.

Posted Jun 17, 2017 by SaraKay423 2170
That all depends on the Severity of the disease and if you are able to find someone that can understand what you will end up going threw as you age and the disease changes with age some partners are able to help you get threw the hard and extremely painful times as others are unable to comprehend how an unseen disease could cause someone to get so sick yet still look and or act while out in public but when you get home you can act like your dying or are in such extreme amounts of pain they don’t know how you can switch from looking fine to being hospitalized in a blink of an eye... it is very hard to keep a relationship with one of the partners having this disease.

Posted May 27, 2018 by Cecilia 4100
It is important to add a Counselor, Therapist or Psychiatrist to your MSK care team as a back up support system to help you cope.

Posted Jul 31, 2018 by Shannon Bauer 4190

Couple and Medullary Sponge Kidney

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Stories of Medullary Sponge Kidney

MEDULLARY SPONGE KIDNEY STORIES
Medullary Sponge Kidney stories
Shannon grew up in Dearborn Heights, a city in the Detroit metropolitan area in Michigan. She grew up in a family who actively participated in church functions such as singing in the choir, teaching Sunday school and performing in church plays. Sha...
Medullary Sponge Kidney stories
I was diagnosed with medullary sponge kidney in August of 2016. I have been struggling with symptoms since 2009, my freshman year of high school. I spent years of having tests done, and no answers. And ever tests done for my kidneys. It was always my...
Medullary Sponge Kidney stories
A couple of times as a child I got a few urinary tract infections and it was never a very big deal, when I was a teenager, I got a couple of kidney stones.  When I was pregnant I got kidney stones with each pregnancy, each pregnancy seemed to come w...
Medullary Sponge Kidney stories
I was first diagnosed a few months after my daughter was born. What I thought was a simple UTI moved up through my bladder, up my ureters, and settled in my kidney. I've felt them ever since. It's a weird sensation knowing where your kidneys are at a...
Medullary Sponge Kidney stories
I have delivered with no drugs or procedures, all natural and can attest that a kidney stone pain is much more painful......as have passed more than 100 kidney stones. i was 24 in 1978 and excited about recently becoming an RN. Working in ICU was my...

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