Medullary Sponge Kidney and depression

Yes having medullary sponge kidney is mostly 99% of the reason for that person with msk to have some kind of depression. The #1 hardest part is feeling alone. As it is such a rare disease that most people do not know anyone that lives near them unless they search very hard to find someone in your area that has it as well. #2 is having a good amount of and a constant active support system to help you feel like you are not alone, useless, a burden to others, and even in some rare cases to keep some that don’t have a good support system can be at risk of committing suicide from a lack of support or feeling like they are crazy... #3 with the now world wide narcotic epidemic most hospital emergency and even family doctors refuse to give the adequate pain relief required to help most that suffer with chronic pain from msk. Also because there is very little known about how msk works or what each person has to deal with pain wise or chronic stone passing the doctors tell patients that their ultrasound, CT scans, and even MRI’s do not show any “active” stones passing threw the ureter And they don’t know why we are having such severe pain or symptoms of passing a stone at that time and tell us there is no pain without an active stone.... their are a few smaller studies that say people with msk have been found to have chronic pain even without the presents of an active stone. But most doctors and even most kidney specialists refuse to read or even reasurch the small amount of information about msk online so they make us believe it is all in our head or we are drug seeking to get high and are trying to blame a disease they think does not have pain without an active stone, and with this being said about 99% of people with msk are refused ANY of not all possibilities of getting the treatment that is very much needed when they suffer from chronic pain with msk. So no support causes feelings of being useless from being in chronic pain, depression because even the doctors refuse to help you with pain management, having doctors make you feel insane for being in chronic pain, not having a supportive husband/wife to help you get threw the hardest of times and pain, and being treated as a drug seeker because their is not enough reasurch to help teach people and doctors the full truth or understanding of living with an invisible chronic pain disease.

The lack of compassion and understanding from your doctors and those surrounding you can increase your chances of severe depression. It is important to add a Counselor, Therapist or Psychiatrist to your MSK Care Team!