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What is the prevalence of Medullary Sponge Kidney?

How many people does Medullary Sponge Kidney affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Medullary Sponge Kidney

Medullary Sponge Kidney (MSK) is a rare congenital disorder affecting the kidneys. It is characterized by the formation of cysts or dilated tubules in the medullary and papillary regions of the kidneys. The exact prevalence of MSK is uncertain due to its often asymptomatic nature, but it is estimated to affect approximately 1 in 5,000 to 20,000 individuals. MSK is more commonly diagnosed in females and is often discovered incidentally during imaging tests for unrelated conditions. While usually benign, MSK can lead to recurrent kidney stones, urinary tract infections, and other complications.



Medullary Sponge Kidney (MSK) is a rare congenital disorder affecting the kidneys. It is characterized by the formation of cysts or dilated tubules in the medullary and papillary regions of the kidneys. While the exact prevalence of MSK is not well-established, it is considered to be a relatively uncommon condition.



Studies suggest that MSK may affect approximately 1 in 5,000 to 20,000 individuals. However, due to its often asymptomatic nature, the actual prevalence might be higher as many cases go undiagnosed. MSK is typically diagnosed incidentally during imaging tests for unrelated conditions or when symptoms such as recurrent kidney stones, urinary tract infections, or blood in the urine occur.



Although MSK can affect individuals of any age, it is most commonly diagnosed in young adults. The condition is thought to be caused by developmental abnormalities in the kidney tubules during fetal development. While the exact mechanisms leading to MSK are not fully understood, genetic factors may also play a role.



While MSK is generally considered a benign condition, it can lead to complications such as kidney stones, urinary tract infections, and impaired kidney function in some cases. Treatment primarily focuses on managing symptoms and preventing complications through measures like increased fluid intake, pain management, and antibiotics when necessary.


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6 answers
Don't know

Posted May 21, 2017 by Brooke 2100
It is not exactly known what percentage of the population is affected but there are more women than men effected.

Posted May 24, 2017 by Angel 2290
More women than men. Known to be congenital, possibly genetic (being researched over time). A congenital defect is formed while in utero. I'm unsure of the exact percentage in the world but it is very slim.

Posted Jun 17, 2017 by SaraKay423 2170
prevalence of about 1/5,000 population. It is usually asymptomatic but can present with hematuria, urinary tract infections (UTIs), or renal stone formation. The age of presentation is usually 20 to 30 years old but more and more people are being found that have been passing kidneystones from a younger age as well as the even more rare few that have the misfortune of passing stones as a baby

Posted May 27, 2018 by Cecilia 4100
MSK affects about one person per 5,000 people in the United States. 12-20% of people who develop calcium based kidney stones have Cacchi-Ricci Disease. Woman are more likely than men to have this rare kidney disease.

Posted Jul 31, 2018 by Shannon Bauer 4190

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Shannon grew up in Dearborn Heights, a city in the Detroit metropolitan area in Michigan. She grew up in a family who actively participated in church functions such as singing in the choir, teaching Sunday school and performing in church plays. Sha...
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I have delivered with no drugs or procedures, all natural and can attest that a kidney stone pain is much more painful......as have passed more than 100 kidney stones. i was 24 in 1978 and excited about recently becoming an RN. Working in ICU was my...

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