8

Which advice would you give to someone who has just been diagnosed with Meniere Syndrome?

See some advice from people with experience in Meniere Syndrome to people who have just been diagnosed with Meniere Syndrome

Meniere Syndrome advice

Advice for Someone Diagnosed with Meniere Syndrome


Receiving a diagnosis of Meniere Syndrome can be overwhelming and bring about a range of emotions. It is important to remember that you are not alone in this journey. Meniere Syndrome is a chronic condition affecting the inner ear, causing symptoms such as vertigo, hearing loss, tinnitus, and a feeling of fullness in the affected ear. While there is no cure for Meniere Syndrome, there are several strategies and lifestyle changes that can help manage the symptoms and improve your quality of life.



1. Educate Yourself:


Take the time to learn about Meniere Syndrome and understand how it affects your body. Knowledge is power, and understanding the condition will help you make informed decisions about your treatment options and lifestyle adjustments. Consult reputable sources such as medical websites, books, or support groups to gather accurate information.



2. Build a Support Network:


Reach out to friends, family, and support groups who can provide emotional support and understanding. Connecting with others who have Meniere Syndrome can be particularly helpful, as they can share their experiences and coping strategies. Online forums and local support groups can be valuable resources for finding support and guidance.



3. Consult a Healthcare Professional:


Make an appointment with an otolaryngologist (ear, nose, and throat specialist) who has experience in treating Meniere Syndrome. They can provide a comprehensive evaluation, confirm the diagnosis, and suggest appropriate treatment options. A healthcare professional will guide you through the management process and help tailor a treatment plan to your specific needs.



4. Explore Treatment Options:


There is no one-size-fits-all approach to treating Meniere Syndrome, as each individual's symptoms and response to treatment may vary. Your healthcare professional may recommend a combination of medications, dietary changes, and lifestyle modifications to manage your symptoms. Common medications prescribed for Meniere Syndrome include diuretics, anti-vertigo medications, and anti-nausea drugs. It is essential to follow your doctor's instructions and report any side effects or concerns.



5. Implement Lifestyle Changes:


Several lifestyle modifications can help reduce the frequency and severity of Meniere Syndrome symptoms:



  • Dietary Changes: Limiting salt intake can help reduce fluid retention and alleviate symptoms. Avoiding caffeine, alcohol, and tobacco may also be beneficial.

  • Stress Management: Stress can exacerbate Meniere Syndrome symptoms. Engage in stress-reducing activities such as meditation, yoga, or deep breathing exercises.

  • Physical Activity: Regular exercise can improve overall well-being and help manage stress. However, be cautious during episodes of vertigo and avoid activities that may increase the risk of falls.

  • Sleep Hygiene: Establish a regular sleep routine and ensure you get enough rest. Fatigue can worsen symptoms, so prioritize quality sleep.

  • Environmental Modifications: Make your living space safe and comfortable. Reduce noise exposure, use assistive devices if needed, and consider making adjustments to your workplace if necessary.



6. Keep a Symptom Diary:


Maintaining a detailed record of your symptoms, triggers, and treatment outcomes can help identify patterns and provide valuable information to your healthcare professional. Note down the duration and intensity of vertigo episodes, changes in hearing, and any other symptoms you experience. This diary will assist your doctor in adjusting your treatment plan accordingly.



7. Be Patient and Kind to Yourself:


Living with Meniere Syndrome can be challenging, and it may take time to find the right combination of treatments that work for you. Be patient with yourself and acknowledge that some days may be more difficult than others. Practice self-care, engage in activities you enjoy, and seek emotional support when needed.



8. Stay Positive:


While Meniere Syndrome can be disruptive, maintaining a positive mindset can make a significant difference in managing the condition. Focus on the aspects of your life that bring you joy and fulfillment. Celebrate small victories and achievements along the way.



Conclusion:


Receiving a diagnosis of Meniere Syndrome may initially feel overwhelming, but with the right support, knowledge, and management strategies, it is possible to lead a fulfilling life. Remember to consult healthcare professionals, educate yourself about the condition, implement lifestyle changes, and build a strong support network. By taking proactive steps and staying positive, you can effectively manage Meniere Syndrome and minimize its impact on your daily life.


Diseasemaps
16 answers
take it very slow. some times you have to take one minute at a time. learn to accept many things in life is. now beyond your control. Keeping a diary is a Must. record symptoms, weather, food, exercise. to start with you might have to enter hourly updates. but don't stop recording. over time you will see patterns on what makes you symptoms worse and better. then try to arrange your life with more good items. and accept there are things that are out of your control. as with all sickness, surrounding yourself with people who will support you new life style also helps. and you are not alone there are many people who suffer with meniere. another but plus find ENT doctor that understand Menieres, not all ENT doctors do. keep looking until you do. and no you are not crazy because your symptoms are maybe nothing when you first wake up but get worse as the day gets older

Posted Feb 21, 2017 by Kathy 1000
Don't panic, this will only increase the severity of your symptoms, ask the right questions of the right people, three are lots of opinions out there, not all helpful.

Posted Mar 16, 2017 by noel 1000
Start a low sodium diet immediately, and take a dietetic and continue even if you are not having vertigo. Find a very good Ear Nose and Throat doctor who has successfully treated Meniere's. Make your life as stress free as possible. Take up yoga, crocheting, knitting, rock balancing, anything that helps with balance or hand eye coordination that does not involve a computer screen. Educate yourself, your family and friends on what to expect. Start planning that there may come a time (a year at least) that you may not be able to work so set money aside.

Posted Apr 26, 2017 by Lisa 1000
Make sure you understand the disease and don't hesitate to ask questions. Join a support group and make sure your relatives and friends understand what to expect.

Posted Oct 5, 2017 by Carole 2000
Do what your doctor says. If you feel you arent making progress get another opinion. Seek out a dr who sepcializes in menieres disease

Posted Jun 5, 2018 by Beth 4050
Things may never get better- swallow that jagged pill, accept it, pull yourself up by your boot straps and let your body find the will to survive. Many days are hell- cherish good times.

Posted Jun 24, 2018 by Ariel 3000
Research the internet

Posted Jun 24, 2018 by Greg 3000
Translated from spanish Improve translation
Q don't despair q if it is difficult, but q little by little you're going to go grab a new life-q and the previous change to if q is new. Q is going to see people q is going to go of your life x q do not understand but you will see people q is always going to be new people and so q mood

Posted Feb 22, 2017 by Nadia 1000
Translated from spanish Improve translation
It is important to know that in every person, the disease behaves in a different way. Do not get scared by reading all that could come to pass, because in many cases with proper treatment the disease is manageable and you can lead a normal life.

Posted Feb 22, 2017 by Axel 1051
Translated from spanish Improve translation
I would advise you to take them in stride. But it is difficult.
My ent has told me more than 10 years ago when I was diagnosed with Ménière's that I always accompany him. What he has done. Have confidence in the physician is essential.
I was prescribed at the beginning medications for depression to help me to accept the disease. I would not do it again because it was hard to leave them and not helped me to nothing.

Posted Feb 22, 2017 by Gene 1551
Translated from spanish Improve translation
In forums and share your experiences. Helps a lot to know people with more years with the same disease

Posted Feb 22, 2017 by Xose Liz 1001
Translated from spanish Improve translation
Look for information in the specialists, who are integrated in groups with people affected by Menier and feel more understood

Posted May 10, 2017 by 1001
Translated from spanish Improve translation
That report in good sources.That is a to a group.That is not what street.If you can,learn to control the stress and go to a place of healing or trapia.

Posted May 19, 2017 by Maria Elena 1721
Translated from spanish Improve translation
Ask all the questions you may have and put you in touch with people with the same problem

Posted Aug 23, 2017 by 2050
Translated from spanish Improve translation
Everything in this life has a solution ... minus the death, your life continues the syndrome is only a companion in your life. You have to learn to live with it and you will see that after a time or you will affect.
When you say that there is/is no cure for this syndrome, remember what treatment that you do to be ok.. and that is what matters, be in good health and enjoy the good things in life

Posted Sep 19, 2017 by Rafael 1650

Meniere Syndrome advice

Meniere Syndrome life expectancy

What is the life expectancy of someone with Meniere Syndrome?

17 answers
Celebrities with Meniere Syndrome

Celebrities with Meniere Syndrome

4 answers
Is Meniere Syndrome hereditary?

Is Meniere Syndrome hereditary?

9 answers
Is Meniere Syndrome contagious?

Is Meniere Syndrome contagious?

8 answers
Natural treatment of Meniere Syndrome

Is there any natural treatment for Meniere Syndrome?

8 answers
ICD9 and ICD10 codes of Meniere Syndrome

ICD10 code of Meniere Syndrome and ICD9 code

8 answers
Living with Meniere Syndrome

Living with Meniere Syndrome. How to live with Meniere Syndrome?

17 answers
Meniere Syndrome diet

Meniere Syndrome diet. Is there a diet which improves the quality of life o...

17 answers

World map of Meniere Syndrome

Find people with Meniere Syndrome through the map. Connect with them and share experiences. Join the Meniere Syndrome community.

Stories of Meniere Syndrome

MENIERE SYNDROME STORIES
Meniere Syndrome stories
It all began one day in 2007, I woke up and there was a noise in my left ear, I thought in many things: maybe the blender (I lived in a shared house), stress, outside noise... Anyway, got up and went to uni. When I got there I realized I couldn't hea...
Meniere Syndrome stories
Hi I have been struggling with my problems for sometime and i sometimes feel lost and lonely it does not help that i am also deaf and i cant walk far i struggle with hearing on the phone and i feel sometimes that you go into a resturant and you see a...
Meniere Syndrome stories
I woke up one morning feeling fine, nothing wrong with me. I started cooking breakfast and couldn't finish because I thought I was gonna pass out. My husband finished it up while I set down confused. The rest of that day every time I got up I would g...
Meniere Syndrome stories
Sufro la enfermedad desde hace 5 o 6 años. En unprincipio, solo tinnitus, y un par de años más tarde, falta de audición y varios episodios d evértigo, nistagmo, descomposturas, desesperación, depresión. También varios ataques de Tumarkin. A e...
Meniere Syndrome stories
I'm a fully liscenced international mountain guide... my life has fallen through the cracks of my invisible chronic illness!!

Tell your story and help others

Tell my story

Meniere Syndrome forum

MENIERE SYNDROME FORUM
Meniere Syndrome forum
i just had my first steroid injection this morning, wondering about how long it takes to feel the benefits of them? Have they helped you?

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map