I first started suffering in my teens, experiencing bouts of excruciating pain in my lower limbs that wouldn't go away. The first time I suffered was the day after I did abseiling on an adventure holiday with school. I was terrified of doing it. The ...
After decades of being seriously ill most of my life I finally found answers from genetic testing and biopsy.Found an incredible doctor that specializes in mitochondrial disease.I have CPEO AND KSS syndrome. Became deaf 23 years ago and now have a co...
My life has become a rollercoaster ride with ups and downs. Mito has taken the life i once knew but not only mine but my family's too. My wife and daughter have seen the once strong man to this person who sleeps lots, no energy, no muscles ec...
24 people with Mitochondrial Myopathy have taken the SF36 survey. Mean of Mitochondrial Myopathy is 1012 points (28 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
