Stories of Mitochondrial Myopathy

STORY
Mitochondrial Myopathy stories
After decades of being seriously ill most of my life I finally found answers from genetic testing and biopsy.Found an incredible doctor that specializes in mitochondrial disease.I have CPEO AND KSS syndrome. Became deaf 23 years ago and now have a co...
Mitochondrial Myopathy stories
  My life has become a rollercoaster ride with ups and downs. Mito has taken the life i once knew but not only mine but my family's too. My wife and daughter have seen the once strong man to this person who sleeps lots, no energy, no muscles ec...
Mitochondrial Myopathy stories
It tog over 10 years to her a diagnose
Mitochondrial Myopathy stories
I've had Mitochondrial Disease since birth. I was diagnosed at the age of 7. 
Mitochondrial Myopathy stories
Born with Pearsons syndrome have now progressed into KSS

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Statistics of Mitochondrial Myopathy

17 people with Mitochondrial Myopathy have taken the SF36 survey. Mean of Mitochondrial Myopathy is 898 points (25 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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