- Mixed Connective Tissue Disease (MCTD)
- Interviews
Mary's interview
How did all start?
Symptoms since childhood, in retrospect. Diagnosis followed extreme fatigue, falling when walking, swollen joints and pain all over.
Do you already have a diagnosis? How long did it take you to get it?
Diagnosed September 2017
For what medical specialties have you been treated? What has been the most useful specialty for your?
MCTD
SLE lupus
Rheumatoid Arthritis
Myositis
fibromyalgia
bursitis
costochondritis
What have been your biggest difficulties?
Being unable to work /financial strain
What things have you stopped doing?
Work and life outside the home
What would you like to do if you didn’t have your condition?
Return to a level of normalcy
Finally, what advice would you give to a person in a similar situation?
Seek help and don't stop until you find a doctor that hears you and you arrive at a diagnosis. Also, because of the rarity of this disease you have to be your item advocate. Research. Network. Connect with others.
