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A Moebius Syndrome story

Aug 6, 2016

Moebius Syndrome
My first grandchild was born with Moebius Syndrome.  He is 9 months old.  He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17.  I would like to get to know other family members who have children or grandchildren with this disorder.  I have done extensive research and I have a deep understanding of it.  I may be in a position of raising my grandson so I just want to connect with others living with this condition.

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