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What is the prevalence of Moebius Syndrome?

How many people does Moebius Syndrome affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Moebius Syndrome

Moebius Syndrome is a rare neurological disorder characterized by facial paralysis and the inability to move the eyes laterally. The exact prevalence of the condition is unknown, but it is estimated to affect approximately 1 in 50,000 to 1 in 500,000 individuals worldwide. Moebius Syndrome can occur in both males and females of all ethnic backgrounds. The condition is typically present at birth, and its cause is still not fully understood. While the prevalence is relatively low, it is important to raise awareness and provide support for individuals and families affected by this condition.



Moebius Syndrome is a rare neurological disorder characterized by facial paralysis and the inability to move the eyes laterally. It is estimated that the prevalence of Moebius Syndrome is approximately 1 in 50,000 to 1 in 500,000 live births worldwide, making it a relatively uncommon condition.


The exact cause of Moebius Syndrome is still unknown, but it is believed to result from a combination of genetic and environmental factors. The condition is typically present at birth, and its symptoms can vary in severity from mild to severe.


Individuals with Moebius Syndrome often face challenges with facial expression, speech, and eye movements. They may also experience difficulties with feeding, swallowing, and limb abnormalities. However, with appropriate medical care, therapy, and support, individuals with Moebius Syndrome can lead fulfilling lives.


Due to its rarity, Moebius Syndrome is not widely known or understood, which can lead to misconceptions and social challenges for those affected. Increased awareness and support from the medical community and society at large can greatly improve the lives of individuals living with Moebius Syndrome.


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Prevalence of Moebius Syndrome

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World map of Moebius Syndrome

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Stories of Moebius Syndrome

MOEBIUS SYNDROME STORIES
Moebius Syndrome stories
It took me 22 years to get the diagnosis for a condition that was visible and written in medical literature since 1888. That's a whole BOOK on aloneness! i went into teaching and taught for 43 years. Lots of advocacy! A few more books here! And I'm...
Moebius Syndrome stories
My first grandchild was born with Moebius Syndrome.  He is 9 months old.  He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17.  I would like to get to know other family members who have children or gra...
Moebius Syndrome stories
I am very worried and happy at the same time when i gave birth to my princess, she is alive but she is in comatose condition for 5days...and stay in the hospital for 27 days. Prayers is always my shield when she is chocking to death and no one is hel...

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