Monilethrix

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Hello,
I was diagnosed with Monilethrix in 1989 at the age of two. The disease has not been in my family before, therefore I am the first “mutant”.
There has been no major improvement of hair growth over the years. Some slight improvement occurred during puberty. At the age of 25 I experimented with Rogane Minoxidil. This showed some slight improvement of hair and beard growth, but then declined again after one or two years. I then stopped using Minoxidil due to the expenses and little results. I found the biggest influence in hair growth to occur in saisonal and regional changes. In Germany I generally have more growth in summer than in winter. At the age of 20 I lived for one year in a tropical area in Africa. In this time I experienced the strongest hair growth resulting in an almost fully covered head.
I usually shave my head to a few mm hair length, and have never worn a wig. I find the most effective way to dealing with the disease in accepting the way my hair looks and concentrating on other ways of improving my physical and personal attractiveness. After some rough teenage years I can clearly say, that the Monilethrix plays a very minor role in my life, also thanks to very good friends and family. As a male I believe it is somewhat easier after a certain age, due to many other men also dealing with hair loss and boldness.
I am interested in hearing some stories of people who have started a family and have dealt with the high possibility of passing on the Monilethrix to their children. Also, I am interested in hearing some experiences from a female perspective.