oğlum tunç Mowat Wilson sendromuyla doğdu ve doğumunun 2. günü kolostomi ameliyatı oldu 90 günlük olduğunda kalp ameliyatı oldu şimdi 5,5 yaşında ve 14 ameliyat oldu ve sorunlarımız devam etmektedir.
Declan was born with Hirschsprungs disease at birth. We found out at about 2 months old that he had Mowat Wilson. He just had his pull through procedure at 8 months old. He is a little developmentally behind. No sitting to or crawling yet but h...
Am was born in 2002. At 8 months old,he was diagnosed with Moway-Wilson Syndrome. From the day he was born, he atruggled with many ailments. Aj passed away in July of 2004.