I was diagnosed in 2012 because I had a stroke. It took 2 years to find a dr that would clarify that i do have moyamoya and to do my surgery. ..had my surgery in 2015 they removed Part of my skull (bone flap)on my right side.. it's been an every day struggle but with God's hands on Me,I'm getting and better. In March I go back for my follow up Mri and angiogram to see if my surgery worked !!!God bless all of you and we can beat this !!!