F45.9 is somatoform disorders, unspecified. The ICD-10-CM tabular indicates that somatoform disorders definition is: "Types of disorders causing inconsistent physical symptoms that cannot be explained." I cannot speak for others with MCS, but my reactions are a consistent constellation of symptoms with a direct correlation to the toxicant. In the absence of the trigger, I have no symptoms.
I've seen it coded as Z91.09, but that is technically "other allergy status, other than to drugs and biological substances." Again, this doesn't fit, as the mechanism of action is typically not an allergic one (though it could be), but rather a toxic reaction. Z codes are to identify the patient history status, but not the current condition. It does not capture that this is an ongoing condition.
There should be a condition code that indicates an ongoing condition that we battle with daily, that can exacerbate at any moment. A code like that would more accurately reflect the condition as a whole. For example, severe persistent asthma codes to J45.50 when the asthma exists but is not currently in a flare. When it is in exacerbation, it codes to J45.51. When it is in status asthmaticus exacerbation, it codes to J45.52. Three codes to describe the condition and its various acute stages. There are no codes like this for MCS, though there should be. This would be the best coding structure to represent the chronicity of our condition.
The T codes are most appropriate when the patient is either in the initial, subsequent, or sequela stages of an exposure, though I still cannot find a specific code. There is toxic exposure to "chemical substances NEC".
Then there is the cause:
Accidental poisoning: T65.91XX-
Self-harm poisoning: T65.92XX-
Poisoning by assault: T65.93XX-
Poisoning, undetermined cause: T65.94XX-
NEC means "not elsewhere classifiable", meaning that the specific substance has been identified, but there is no good code selection. It is the catch-all for the acute phase of the exposure to the toxin (7th character A), the subsequent phase (7th character D...subsequent phase is when the acute phase has resolved but you are still recovering from the exposure), and sequela (7th character S...this is when the acute and healing phases are complete, yet you are left with a persistent deficit of some sort.
It is disturbing to work with these codes every single day (this is my job), though I have yet (in five years of doing this job) to ever see codes available that accurately reflects our condition.