Stories of Multiple Endocrine Neoplasia

STORY
Multiple Endocrine Neoplasia stories
I am 39 with a loving husband and two young kids and unfortunately MEN2A.  I was diagnosed in the fall of 2015.  I had recurrent hyperparathyroidism that I couldn't get any doctor to take seriously despite being a physician myself.  I ...
Multiple Endocrine Neoplasia stories
I am the caregiver of my 4 family members who suffer from this disease. My husband and our 3 daughters were diagnosed in 2013.  Their treatment is in our hometown of St. Louis, MO.  It spins my mind how this disease starts so simple but is ...
Multiple Endocrine Neoplasia stories
I was discovered to have MEN2a (c634) in 2000 after surviving a rather large and active phaeochromocytoma.  Subsequently I was offered genetic testing and was then diagnosed with medullary thyroid cancer - my thyroid was removed.  My son (t...

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Statistics of Multiple Endocrine Neoplasia

3 people with Multiple Endocrine Neoplasia have taken the SF36 survey. Mean of Multiple Endocrine Neoplasia is 2088 points (58 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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