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Can people with Multiple epiphyseal dysplasia work? What kind of work can they perform?

See how people with experience in Multiple epiphyseal dysplasia give their opinion about whether people with Multiple epiphyseal dysplasia can work and what kind of jobs are more appropriated for people with Multiple epiphyseal dysplasia

Multiple epiphyseal dysplasia jobs

Can people with Multiple Epiphyseal Dysplasia work?


Multiple Epiphyseal Dysplasia (MED), also known as Fairbank disease, is a rare genetic disorder that affects the development of the bones and joints. It primarily affects the growth plates, which are responsible for bone growth in children. MED can cause various skeletal abnormalities, including short stature, joint pain, and limited joint mobility.


While MED can present challenges in daily life, it does not necessarily prevent individuals from working. The ability to work with MED depends on the severity of the condition, the specific symptoms experienced, and the individual's overall health and functional abilities.


Employment Opportunities for People with MED:


1. Office-based Jobs: Individuals with MED who experience joint pain or limited mobility may find office-based jobs suitable. These can include administrative roles, customer service, data entry, accounting, or other desk-based occupations that do not require extensive physical activity.


2. Professional Careers: Many professional careers do not require physical exertion and can be pursued by individuals with MED. These can include professions such as lawyers, accountants, engineers, architects, writers, researchers, and various other knowledge-based occupations.


3. Artistic and Creative Fields: People with MED often possess unique perspectives and talents that can be channeled into artistic and creative fields. Careers in graphic design, photography, writing, painting, music, and other creative pursuits can be well-suited for individuals with MED.


4. Technology and IT: The technology sector offers a wide range of job opportunities that may be suitable for individuals with MED. Roles such as software development, web design, data analysis, technical support, and project management can be pursued by individuals with MED who have an aptitude for technology.


5. Education and Research: Individuals with MED can contribute to the field of education as teachers, professors, researchers, or educational administrators. These roles often involve minimal physical demands and focus on intellectual contributions.


6. Entrepreneurship: Starting a business or working as a freelancer can provide individuals with MED the flexibility to accommodate their specific needs and limitations. Entrepreneurship allows for customization of work environments and schedules, making it a viable option for individuals with MED.


Considerations for Individuals with MED:


While individuals with MED can pursue various career paths, it is important to consider certain factors:


1. Physical Limitations: Depending on the severity of MED symptoms, individuals may need to consider their physical limitations when choosing a career. Jobs that require extensive physical activity or heavy lifting may not be suitable for individuals with MED.


2. Accommodations: Some individuals with MED may require workplace accommodations to optimize their productivity and comfort. This can include ergonomic workstations, assistive devices, flexible schedules, or modified job tasks. Employers should be willing to provide reasonable accommodations as required by law.


3. Medical Management: Regular medical management and treatment are essential for individuals with MED. It is important to prioritize healthcare needs and ensure that work schedules and demands do not interfere with necessary medical appointments or treatments.


4. Supportive Work Environment: A supportive work environment can greatly enhance the experience of individuals with MED. Employers and colleagues who understand the condition and provide support and understanding can contribute to a positive work experience.


Conclusion:


Multiple Epiphyseal Dysplasia does not necessarily prevent individuals from working. While physical limitations and symptoms may influence the choice of career, there are numerous job opportunities available that can be pursued by individuals with MED. It is important for individuals with MED to consider their specific needs, seek appropriate accommodations, and prioritize their health while pursuing their chosen career path.


Diseasemaps
5 answers
Jobs that have a good balance between standing, walking, and sitting are beneficial. While it is possible to work in all fields, it may be more difficult if in a position that requires excessive time doing only walking, sitting, or standing in place. Individuals should be comfortable knowing their physical limitations. Most employers I have worked with personally, have been accommodating and understanding that there are good days and bad days.

Posted Mar 4, 2017 by Sarah 2000
They can work and what career they go into depends on the severity of there disease for example it wouldn't be wise for someone with severe med to become a personal trainer

Posted Mar 5, 2017 by Chloe_MED 820
Yes, they can do pretty much every job.

Posted Dec 14, 2017 by Annalise 900
Translated from portuguese Improve translation
Depending on the degree of commitment and care during the day-to-day, leads a normal life.

Posted Nov 19, 2017 by Daniela Corrêa De 2500

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Multiple epiphyseal dysplasia stories
- Agreements between Morquio and Med-Sed. Both are growth failure due to defects in the growth plates. The disease has a similar progress and problems. - Difference between Morquio and Med-Sed. Morquio is a metabolic disease and Med-Sed is genetical...
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I was diagnosed at 9 months. I inherited MED from my mum, who has had 5 hip replacements and 2 shoulders. And is now awaiting a knee replacement. It's been very hard living with this, it causes pain everyday and I'm on a lot of pain meds. I have my h...

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