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What is the life expectancy of someone with Multiple Systems Atrophy?

Life expectancy of people with Multiple Systems Atrophy and recent progresses and researches in Multiple Systems Atrophy

Multiple Systems Atrophy life expectancy

Multiple Systems Atrophy (MSA) is a rare neurodegenerative disorder that affects the autonomic nervous system and movement. Unfortunately, MSA is a progressive disease with no known cure, and its prognosis varies from person to person. The life expectancy of individuals with MSA is generally around 6 to 10 years from the onset of symptoms. However, it is important to note that this can vary significantly depending on various factors such as age, overall health, and the specific subtype of MSA. It is crucial for individuals with MSA to receive appropriate medical care and support to manage symptoms and improve quality of life.



Multiple System Atrophy (MSA) is a rare and progressive neurodegenerative disorder that affects multiple systems in the body. It is characterized by a combination of symptoms that resemble Parkinson's disease, autonomic dysfunction, and cerebellar ataxia. MSA is a debilitating condition that significantly impacts the quality of life of those affected.



When it comes to discussing life expectancy in MSA, it is important to note that the disease progression and individual experiences can vary widely. The prognosis for MSA is generally poor, with most patients experiencing a gradual decline in function over time.



There are two main subtypes of MSA: MSA with predominant parkinsonism (MSA-P) and MSA with predominant cerebellar ataxia (MSA-C). MSA-P is characterized by symptoms similar to Parkinson's disease, such as bradykinesia (slowness of movement), rigidity, and postural instability. MSA-C, on the other hand, primarily affects coordination and balance, leading to difficulties with walking, coordination, and fine motor skills.



The life expectancy of individuals with MSA varies depending on several factors:




  1. Age at onset: Generally, individuals who develop MSA at a younger age tend to have a more rapid disease progression and shorter life expectancy compared to those who develop it later in life.

  2. Subtype of MSA: Studies suggest that MSA-P may have a slightly shorter life expectancy compared to MSA-C, although the difference is not significant.

  3. Rate of disease progression: The speed at which MSA progresses can vary among individuals. Some may experience a more rapid decline in function, while others may have a slower progression.

  4. Individual variability: Each person's response to MSA is unique, and the severity of symptoms and rate of progression can differ widely. This makes it challenging to predict an exact life expectancy for someone with MSA.



On average, studies suggest that individuals with MSA have a reduced life expectancy compared to the general population. The median survival after diagnosis is estimated to be around 6 to 10 years, although some individuals may live for more than 15 years after diagnosis. It is important to note that these figures are based on population averages and do not reflect the experience of every individual with MSA.



It is crucial to emphasize that MSA is a highly variable disease, and each person's journey is unique. Some individuals may experience a more rapid decline in function and have a shorter life expectancy, while others may have a slower progression and live longer. The focus of treatment and care for individuals with MSA is primarily on managing symptoms, improving quality of life, and providing support for both the affected individual and their caregivers.



If you or someone you know has been diagnosed with MSA, it is essential to work closely with healthcare professionals who specialize in neurodegenerative disorders. They can provide personalized guidance, support, and help navigate the challenges associated with MSA.


Diseasemaps
6 answers
5 to 10 years -- pneumonia will set in before the disease takes away life

Posted Jul 9, 2017 by Mary 1000
As of 2018 the current life expectancy for MSA is 7 - 10 years after first symptom onset. This is highly variable from person to person. There are known autopsy confirmed MSA cases where a patient survived 18 years.

Posted Jul 11, 2017 by Pam Bower 2952
Between 5 and 13 years

Posted Jan 4, 2018 by Jan 1500
Current thinking is 6-9 years following the first symptoms. However, it is often hard to determine when someone experienced their first symptoms. And if what we know about Parkinson’s holds true, by the time the first symptoms show up, the disease has been present for awhile.

If you want to register for information on Clinical Trials, the Michael J Fox foundation provides information on all of the trials and you can sign up there.

Posted Mar 23, 2018 by [email protected] 3020
Translated from spanish Improve translation
It is estimated that the person can survive 6 to 7 years, but it depends on the age of onset of the disease. The younger the person, the more years with the disease. Still no cure for the disease.

Posted May 10, 2017 by Lorena 1000

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I was a carer to my sister Maureen who passed away from MSA in April 2014. I am more than happy to talk to anyone re: this disease (Multiple System Atrophy) & point them in the right direction for further information, or to just lend an ear if someon...
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Does anyone with MSA experience the sensation like you are "bobbing up and down" on a boat?  I experience this most of the time.  It tends to lessen by standing up or laying down!  If so, do you know what it is?   
Multiple Systems Atrophy forum
Anyone with this? Hoe is it? https://clinicaltrials.gov/ct2/show/NCT02388295?term=msa&rank=4
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Thanks for adding your marker to the World MSA map. If you know others from the various MSA forums please encourage them to do the same. Did you know... A 57 page booklet of MSA information is available to download from the MSA Coalition website.&nbs...
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When: October 14 - 15, 2016 Where: New Orleans, Louisiana, USA Register now and get your FREE ticket at Http://www.MultipleSystemAtrophy.org Tentative Conference Schedule Many thanks to this year’s medical host, David Houghton, M...
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Chicago and area MSA support group meeting April 17th 2-4PM Goodwill Crystal Lake - 1016 Central Park Drive, Crystal Lake, IL. Contact John Standley [email protected] 815-403-2221

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