Multiple Systems Atrophy prognosis
What is the prognosis if you have Multiple Systems Atrophy? Quality of life, limitations and expectatios of someone with Multiple Systems Atrophy.
Multiple System Atrophy (MSA) is a rare neurodegenerative disorder that affects the autonomic nervous system and movement. It is characterized by a progressive decline in motor function, autonomic dysfunction, and various other symptoms.
The prognosis of MSA is unfortunately poor, as it is a progressive and incurable disease. The average life expectancy after diagnosis is typically around 6 to 10 years, although this can vary depending on individual factors and disease progression.
MSA is divided into two main subtypes: MSA with predominant parkinsonism (MSA-P) and MSA with predominant cerebellar ataxia (MSA-C). MSA-P is characterized by symptoms similar to Parkinson's disease, such as bradykinesia (slowness of movement), rigidity, and tremors. MSA-C, on the other hand, primarily affects coordination and balance, leading to difficulties with walking, speech, and fine motor skills.
As the disease progresses, individuals with MSA may experience a decline in their ability to perform daily activities, such as walking, swallowing, and speaking. Autonomic dysfunction can lead to problems with blood pressure regulation, bladder and bowel control, and sexual function. Respiratory complications can also arise, increasing the risk of pneumonia and other respiratory infections.
While there is no cure for MSA, treatment focuses on managing symptoms and improving quality of life. Medications may be prescribed to alleviate specific symptoms, such as levodopa for parkinsonism or medications to address orthostatic hypotension (low blood pressure upon standing). Physical therapy, occupational therapy, and speech therapy can help maintain function and manage symptoms.
It is important for individuals with MSA to work closely with a healthcare team to address their specific needs and develop a comprehensive care plan. Supportive care, including assistive devices, mobility aids, and modifications to the living environment, can also play a crucial role in enhancing independence and safety.
Overall, the prognosis for Multiple System Atrophy is unfortunately poor, with a progressive decline in function and a relatively short life expectancy. However, early diagnosis, symptom management, and a comprehensive care plan can help improve quality of life and provide support for individuals living with MSA.
Posted Mar 24, 2018 by [email protected] 3020
For MSA patients, one common symptom is low blood pressure when standing (Neurogenic Orthostatic Hypotension) which leads to passing out and injury from falls. There are several drugs that are often prescribed to MSA patients for this symptom. Florinef, Midodrine and Droxidopa are the most common ones. Each of these work slightly differently in the body in order to cause an increase in blood pressure. There are also non-pharmaceutical interventions that can raise blood pressure such as quickly drinking 16 oz of water in the morning before getting out of bed and eating a high salt diet.
Diligent attention to symptom management such as interventions to keep blood pressure from going too low when standing, using a walking aide or wheelchair to prevent falls, staying well hydrated to prevent urinary tract infections, speech and swallowing therapy to avoid choking which might lead to lung infections (pneumonia), physical therapy and exercise to maintain mobility. These efforts can all contribute to increased quality of life and possibly increased life expectancy although there is very little scientific data available to support this.
Posted Mar 31, 2018 by Pam Bower 2952
