Story about Muscular dystrophy .

My Life as of Right Now

Feb 21, 2016


At birth when I had breathing problems, I was moved to the NICU.  I was diagnosed with two other diseases before we received a correct diagnose at the University of Iowa after a muscle biopsy at age 10.  I visit a neuromuscular specialist in Des Moines twice a year.   Her main office is at the University of Iowa Children's Hospital in Iowa City.   

I SEE SEVERAL SPECIALISTS A YEAR.  SOME INCLUDE PULMONARY, NEUROMUSCULAR, DERMATOLOGY, ORTHOPEDIC, OPHTHALMOLOGY, AND ALSO AQUATIC THERAPY.  INSURANCE COVERS A LITTLE BUT DUE TO HIGH COSTS OF RAISING ME; OUR FAMILY COVERS MOST OF THE COST.  I HAVE A LOT OF YEARLY EXPENSES. 

I HAVE MANY UNFORESEEN EXPENSES SUCH AS A WHEELCHAIR RAMP AND BATHING/BATHROOM/VEHICLE UPDATES.    I RECEIVE NO GOVERNMENT ASSISTANCE. 

I AM 13 YEARS OLD AND USE A POWER WHEELCHAIR TO ASSIST ME DURING SCHOOL AND OUTINGS.  I NEED SOMEONE TO HOLD MY ARMS WHEN I WALK AROUND OUR HOME.  SOMETIMES VERY DEMANDING AT TIMES FOR MY PARENTS TO CARE FOR A PHYSICALLY DISABLED CHILD THAT INCLUDES DRESSING, BATHROOM, SHOWER, LIFTING AND WRITING ASSISTANCE.  

I BELIEVE I'M AN AWESOME WELL SPOKEN KID.  I TRY TO MAINTAIN A POSITIVE OUTLOOK AND HOPE TO BECOME A PHILANTHROPIST SOMEDAY TO HELP KIDS LIKE ME.  I TRY TO REMAIN POSITIVE THROUGHOUT MY LIFE EVEN WHEN I BECOME SAD.  I AM VERY CREATIVE AND ENJOY MAKING YOUTUBE VIDEOS.  I HOPES TO CREATE VIDEO GAMES SOMEDAY. 

MY GO FUND ME PAGE IS

HTTPS://WWW.GOFUNDME.COM/DALTON-BOYD

THANK YOU.

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