Story about Mycosis Fungoides .

My non Hodgkins lymphoma mycosis fungoide cutaneous t cell

Jul 28, 2017


I went to the doctor in January 2015 I was diagnosed with toe fungus. Then 3 months later I was diagnosed with roscasia. In between time when I had my hair coloured I turned orange. Then July I was diagnosed with psoriasis. I told the doctor it seemed strange all this happening and he said he will do a biopsy. In September he called me back and said not to worry it is cancer but not a killer. I was diagnosed with my title. He sent me to a dermatologist in Regina. She done everything possible. I had pills creams and finally puva. 

She was not aware that I had not been sent to the cancer clinic. She sent me there and the doctor oncologist sent me back to the dermatologist. He did do a bone biopsy. The dermatologist said I would need full body radiation as it had spread all over my body. We see the oncologist and he sent me to a dermatologist at the hospital. She sent me to Winnipeg. That was January 2017. Since then I have had full body radiation and boosters on different parts of body 17 radiation therapy. I then have had sepsis and admitted to hospital for 5 days. I am now having chemo. I had a lymph node biopsy and it came back cancer. 

In my CT scan in may the lymph nodes are getting smaller. 

I am due for another CT scan in August. Hopefully it worked but I am still getting marks on my body the oncologist put Cort ozone injection but the chemo doctor gave me antibiotics. 

I am waiting for the CT scan and I have one more chemo 

Fingers crossed that I can be clear. I was diagnosed with stage 4 that's because it went into my lymph nodes. 

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