Story about Myofascial Pain Syndrome , Bipolar Disorder, Chronic Fatigue Syndrome / M.E..

my life

Dec 2, 2


 

My Story: Christina Garcia

 

What were the steps leading up to your diagnosis?It was a long two years of my doctor ignoring my complaints. Eventually, he finally did blood work and prescribed me lupus medication, thinking that was what was wrong. The test came back positive for ANAs, but since I didn’t have a rash on my face, he told me I had fibro funk.What lifestyle changes have you needed to make?

 

My life has completely changed since my diagnosis in 1999. I used to be a social butterfly and I loved to dance my heart out. Now, I can no longer dance; instead, I sit on my porch or stay in the house.

 

My friends, for the most part, are all gone. I talk to them on Facebook but am never able to show up to their events.

 

I spend all morning trying to get up just to drive two minutes to my daughter’s school. Afterwards, I return home to sit all day until it's time to pick her up, which I dread. Then I find the strength to clean up, shower and cook. After that, I’m exhausted.

 

Pain: it’s the new norm for me. Even with medication, I have not had a pain-free day in years.

 

Who has been there for you? How?

 

That’s hard to say. No one has ever truly been there for me; they come by once a month to make themselves feel better. Except my mom, she comes every Friday to visit me, even if it’s just to join me on the porch. If only she knew how much those visits mean to me.

 

My life has completely changed since my diagnosis in 1999 ... I loved to dance my heart out.

 

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I am proud that I still smile and laugh...

 

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What accomplishment are you proud of?I have many illnesses including fibromyalgia, bipolar, anxiety, myofacial pain syndrome and now something that is even more painful but has not yet been diagnosed due to a lack of insurance (my fingers and joints are deforming and it's worse than the fibro pain has ever been). I am proud that with all of this I still have hope and I still wake up every day and force myself to clean, cook, and be a wife and mother. I am proud that I still smile and laugh in front of my kids. Even though I want to give up, I don’t. I keep on going in silent misery.

 

Even though I want to give up, I don’t.

 

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What's your advice to someone else living with Fibromyalgia?

 

My best advice is to find your inner strength and once you’ve found it, hold on to it. It’s going to be what gets you through this.

 

Is there anything else we should know?

 

I have multiple illnesses with a new one undiagnosed that is already making me beg for fibromyalgia. People tell me all the time that I am one of a kind. My response to that is “yes, I’m one of every kind there is”!

 

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Facebook Activity

 

BJ Shockley

 

updated about 7 months ago

 

Hanging on by a thread

 

Mechelle Gardner

 

updated about 7 months ago

 

Magnesium pills, vitamin B and C...multivitamin plus 2 bananas a day... Ticks and jerks are under control!! No more shaky hands or jerking myself so hard that I wake up!! Simple routine that has made such a difference.... Now I can refocus on the rest. Thankful I can check this one off my list! :)

 

Patricia Price Sipes

 

updated about 7 months ago

 

That's just one of the many side fun things that a person goes through with Fibro,many side problems that how you know that you have the diease.

 

Patricia Price Sipes

 

updated about 7 months ago

 

Well I see that she hasn't loss her hair yet must no have had Fibro very long.

 

Rhonda Wilborn

 

updated about 7 months ago

 

I have FIBRO and have taken many different Meds. None of them completely take the pain away. I just do the best I can. Sure does hurt when ppl look at you like there is nothing wrong.

 

12 found this helpful

 

Rhonda Wilborn

 

updated about 7 months ago

 

May have to get one..right now I will try just about anything new...Thanks Pat Haer!!!!!

 

Pat Haer

 

updated about 7 months ago

 

Rhonda, I just got a heated mattress pad helps get some sleep !

 

Tina Ruscetti-Bonanno

 

updated about 7 months ago

 

I Feel the same exact way Thank you for sharing Stay strong <3

 

Marianne J Hypes

 

updated about 7 months ago

 

This is my story. I don't have all the extra issues she has, but I do have IBS , diverticulosis . Depression and arthritis .

 

Dar Alm

 

updated about 7 months ago

 

I have dealt with it since 1986! It waxes and wanes. Hang in there!!

 

Jamie Smith Wilms

 

updated about 7 months ago

 

some of you so called friends,this is part of me read her story and then maybe you will understand.I struggle every day. I was diagnosted 5 yrs now. Have tried lyrica (reaction)cymbalta(reaction)sevela(reaction)nothing works alot of pain pills(before this never even took tylenal) now i can hardly walk. I do find if i stay it bed it is worse. I also have arthritis osteo recall hip replacement and knee replacement all on right side. Have embelisums in my lung from sergeory.. and my brain just doesn't want to work the way it use to. They say that is the fibro. Anybody else have that. It is like a fog. Forget what i am doing. Where i am going. And no I don't abuse meds i take the pain for as long as poss. I will keep going just crying trying not to take it.Hardly leave my house any more.It wipes me out so much.and now on coumadin it kills me. I use to be very social. Now can't no matter where i go people ask me if I am ok. They can see the pain in my face. Family yay right I am 1 of 9 and no they don't get it. They hardly even talk to me now. OUT OF SIGHT OUT OF MIND.If they don't see it they don't have to deal with it. Sorry going on and on. It hurts !!! Thanks for shareing I thought I was alone.

 

2 found this helpful

 

Jamie Smith Wilms

 

updated about 7 months ago

 

thank-you it is hard.

 

Judy Alford Villanueva

 

updated about 7 months ago

 

No you are not alone. I have had this since I was 35 and I am 67 now. My daughter is 32 and has started with the same thing. She and I just cling together and don't talk about it to anyone because people think you are pretending....Having my 2 boys say that I am pretending is almost unbearable emotionally for me. I don't know how so called family can be so cruel.... Hang in there ....you are not alone...

 

Deborah Sinnott Sizemore

 

updated about 7 months ago

 

Thank you Christina for sharing ,my husband is my only real support ,my grown children don't understand and I feel like they don't believe me .They keep asking when going back to work !Like Im lazy and dependent .They don't understand how I live with pain and exhaustion every minute of every day

 

10 found this helpful

 

Judy Alford Villanueva

 

updated about 7 months ago

 

I know I have the same situation and I also have diabetes....I have had this since I was 35 and I am 67 now...Life is hard....

 

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