I haven't had a Nager-related surgery for over a decade, so I only hear a little about updates from campers at Camp About Face in Indiana. A good Facebook search might have parent groups for Nager.
I was born in the early 80s when medical technology was just beginning to advance. I often dealt with self-esteem issues growing up, but eventually came around and now fully embrace myself. I realized my having Nager Syndrome was much more of a bless...