Stories of Narcolepsy

Narcolepsy stories
I have suffered from chronic pain for 22 yrs. I have 5 bulging and herniated disc's, DDD, Fibromyalgia, CTS, CFS, Narcolepsy, PTSD (9/11) and recently due to Fibro I fainted and injured both ankles, both knees, R wrist and my neck from hitting my fac...
Narcolepsy stories
If you have any questions or just want to chat, just contact me. :)It all started slowly in maybe february 2011. I had just finished being in a professional theater play for chritsmas a few months before, and troubles started in my family. I felt tir...
Narcolepsy stories
My first brush with chronic pain was when I was 17 and developed TMJ problems. Back them, no one knew anything about it. Thankfully my mom didn't give up. 17 doctors later she found me an amazing Dentist (still my Dentist and pseudo Grandfather to my...
Narcolepsy stories
I've had Narcolepsy with Cataplexy my whole life, but I wasn't diagnosed until 2008-2010.  It took me a few years to find & build a relationship with a good sleep specialist.  Right now I have medications that help me get...
Narcolepsy stories
I began getting extremely sick in July 2014 and had a partial kidney removal due to renal cell carcinoma that is in remission.  Since 2014 I have maybe felt well for 2wks and worked as much as possible since it was a sit down job and I could pro...

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Narcolepsy forum

Question 100
Does anyone experience severe body pain? Especially upon waking up and if not moving frequently. I wake up in a lot of pain every moring. I know that I clench my muscles while I sleep (although I am trying to convince my Dr. otherwise) as I have been...
Question 187
Anyone has experienced any kind of memory loss? I have problems to remember things just after doing or telling them and I think it could be related to the narcolepsy
Question 318
Does anyone currently/previously have/had problems with weight GAIN &/OR bloating from Xyrem? If so... Have you found anything that helps?
Question 30
Has anyone ever noticed a corrolation between people who have narcolepsy and are also psychically sensitive?
Question 361
I have been recently (like 1 month ago) diagnosed with Narcolepsy and also diagnosed with Sleep Apnea about 1 year ago. My question is maybe a but vague... Since this is alll so new to me, I've reaized that since I have had this condition for so many...

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Statistics of Narcolepsy

139 people with Narcolepsy have taken the SF36 survey. Mean of Narcolepsy is 1538 points (43 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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