Living with Necrotizing Enterocolitis NEC. How to live with Necrotizing Enterocolitis NEC?

Necrotizing Enterocolitis (NEC) is a serious condition that affects the intestines, primarily in premature infants. It occurs when the tissue in the intestines becomes inflamed and starts to die. Living with NEC can be challenging, but with proper care and support, it is possible to manage the condition and improve quality of life.

Medical Management

Proper medical management is crucial for individuals living with NEC. This typically involves a multidisciplinary approach, including neonatologists, pediatric surgeons, and other healthcare professionals. Treatment options may include:

• Antibiotics: To fight off any infection that may be present.


• Intravenous (IV) fluids: To provide necessary hydration and nutrition.


• Surgery: In severe cases, surgical intervention may be required to remove damaged portions of the intestines.

Diet and Nutrition

Diet and nutrition play a vital role in managing NEC. Depending on the severity of the condition, individuals may require specialized feeding techniques, such as:

• Parenteral nutrition: Providing nutrition through an IV when the intestines are unable to absorb nutrients.


• Gastrostomy tube: A tube inserted through the abdomen to deliver nutrition directly to the stomach.


• Oral feeding: Gradually introducing oral feeds once the intestines have healed and can tolerate them.

It is important to work closely with a registered dietitian or healthcare provider to develop an appropriate feeding plan and ensure adequate nutrition.

Monitoring and Follow-up

Regular monitoring and follow-up are essential for individuals with NEC. This may involve:

• Medical check-ups: Regular visits to healthcare providers to assess progress and address any concerns.


• Imaging tests: Periodic imaging tests, such as X-rays or ultrasounds, to monitor the intestines' healing and detect any complications.


• Growth and development assessments: Tracking growth, weight gain, and developmental milestones to ensure proper progress.

Emotional Support

Living with NEC can be emotionally challenging for both individuals and their families. It is important to seek emotional support from healthcare professionals, support groups, and loved ones. Some helpful strategies include:

• Joining support groups: Connecting with others who have experienced similar challenges can provide a sense of understanding and community.


• Seeking counseling: Professional counseling can help individuals and families cope with the emotional impact of NEC.


• Building a support network: Surrounding yourself with supportive family and friends who can offer assistance and understanding.

Lifestyle Modifications

Adopting certain lifestyle modifications can help individuals with NEC manage their condition more effectively. These may include:

• Maintaining good hygiene: Practicing proper handwashing and cleanliness to reduce the risk of infections.


• Following medical advice: Adhering to prescribed medications, dietary recommendations, and follow-up appointments.


• Staying informed: Educating oneself about NEC, its symptoms, and potential complications to make informed decisions and seek prompt medical attention when necessary.

Living with NEC requires ongoing medical management, dietary considerations, regular monitoring, emotional support, and lifestyle modifications. By following these strategies and working closely with healthcare professionals, individuals with NEC can lead fulfilling lives and optimize their overall well-being.