Help us to help more people
  2. Nemaline Myopathy
  3. Stories
Story about Nemaline Myopathy , Nemaline Myopathy.

nemaline myopathy

Aug 29, 2017

By: Laura

Year Condition Began: 2004

Nemaline Myopathy
Nemaline Myopathy
ACTA1 ;mild to severe side; NIV/night, Gtube, spinal curvature >70, surgery never done/considered too risky by local surgs

Complicated labor-ischemic hypoxia
autistic, failure to thrive
used to walk 2 to 5 years

declining :(

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

ICD9 and ICD10 codes of Nemaline Myopathy

ICD10 code of Nemaline Myopathy and ICD9 code
History of Nemaline Myopathy

What is the history of Nemaline Myopathy?
Nemaline Myopathy causes

Which are the causes of Nemaline Myopathy?
Nemaline Myopathy diagnosis

How is Nemaline Myopathy diagnosed?
Nemaline Myopathy sports

Is it advisable to do exercise when affected by Nemaline Myopathy? Whi...
Prevalence of Nemaline Myopathy

What is the prevalence of Nemaline Myopathy?
Living with Nemaline Myopathy

Living with Nemaline Myopathy. How to live with Nemaline Myopathy?
Is Nemaline Myopathy contagious?

Is Nemaline Myopathy contagious?