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Nemaline Myopathy
Stories
NM from Holland
Aug 30, 2017
By:
Mariah
Year Condition Began:
2001
Nemaline Myopathy
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In 2000 a student of an University asked my familie to help her with a study about Nemaline/
We did and our weakness had a name now. In 2011 they found the gene KB TBD13 (Chromosoom)
And we have the severe NM. number 6.
When i was young i had not many problems.
Now i am getting older i get weaker .
Also my sisters.
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