Wesley "little bear" Chew
Error
I gave birth to my son prematurely on December 9th 2013, he was born sick with very bad liver numbers. He was transferred from the hospital we gave birth at (Grandview Hospital) to the Children's Hospital of Philadelphia on December 16th, 2013. He had numerous surgeries and procedures done, and the liver biopsy was ultimately the surgery where they were able to definitively give him the diagnosis of Neonatal Hemochromatosis on January 1st, 2014. He was getting better with time, and was doing well, until the broviac line they placed directly to his heart, to help with him receiving his medicine and blood products, because his IV kept becoming included, and would not work, and were also very difficult to place, but the broviac ended up getting an infection in the tip of the catheter. They didn't realize it until they removed the line after blood work, and testing the tip of the catheter, finally showed he had sepsis. They kept assuming it was a cold because he had a hard time breathing, and was running a fever. Well during this they decided to place a ET tube to help him breath when he never had a problem ever breathing and because they assumed it was a respiratory issue before actually doing any blood work or testing. He was receiving antibiotics and was getting better, so they decided to take out the ET tube which he never needed, since his lungs were strong, his liver levels were not checked prior to pulling it so when he went to have his first cry, he ended up having a pulmonary aneurysm, bursting all of his blood vessels in his lungs. He took an extreme hit from this, and his body wasn't able to come back from it, his organs began to fail, and he was brain dead almost a whole month later, when the whole time we thought he was over the bad times. One day he was okay and the next, it was like our little baby boy completely checked out from his whole body. He didn't close his eyes for 3 days straight, he began urinating blood, and his liver was dying, and many other of his vital organs. The doctors told us the best thing we could do was take him off of life support, because he was suffering and there was no coming back from it. So on February 22nd, 2014, the removed his breathing tube, and our son died in mine and my husbands arms. We still feel like we were cheated out on his life, mistakes were made that never should have been, that he would still be here today if they listened to us, and did what they should have for him. We had two healthy beautiful girls before he was born with normal pregnancies the same as his, we never knew anything was wrong until he was born. He was our first born son, and the day he passed away we conceived and became pregnant with our second son but fourth child. I went through IVIG my whole pregnancy and he was born healthy but with low blood sugars. And I think because of the hospital failing us with Wesley they were very careful with our son Mikey and kept him in the NICU almost a entire month to make sure he was ok. He is now going to be 3 years old on November 7th, 2017 and is healthy as an ox weighing in at 52lbs!!! I so deeply believe he was given to us the day Wesley died for a reason, and that he is a huge piece of his big brother, who would be 4 years old this December 9th, 2017. They would have been Irish twins at only 11months apart, and not a day goes by that we don't think of Wesley and especially how close he would have been to his little brother, and how much his 2 big sisters would be spoiling him.
0 comments
