Stories of Niemann-Pick Disease

STORY
Niemann-Pick Disease stories
My name is Dylan,  I am the father of Amber Ashlee Jelsma who passed away on 10/10/2013.
Niemann-Pick Disease stories
Me chamo Rosangela, sou mãe de uma portadora de NIemann Pick tipo B, ela tem 14 anos, moramos no Brasil. Ela tem o sintomas desdes os 4 anos de idade, mas somente aos 8 anos tivemos o diagnostico de NPB, desde então não fazemos ...
Niemann-Pick Disease stories
My name is April.  I am 34 and live in the San Antonio, Texas area.  I was born with Niemann Pick Type B (ASMD).  I was diagnosed at Loma Linda in California when I was 2 while in the hospital with Mono.   I had multiple surgeries...
Niemann-Pick Disease stories
Haven was diagnosed at 4 mos. with Niemann-Pick Type A. He passed away at 14 mos. 

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Statistics of Niemann-Pick Disease

0 people with Niemann-Pick Disease have taken the SF36 survey. Mean of Niemann-Pick Disease is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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