Stories of Niemann-Pick Disease

Niemann-Pick Disease stories
My name is Dylan,  I am the father of Amber Ashlee Jelsma who passed away on 10/10/2013.
Niemann-Pick Disease stories
Me chamo Rosangela, sou mãe de uma portadora de NIemann Pick tipo B, ela tem 14 anos, moramos no Brasil. Ela tem o sintomas desdes os 4 anos de idade, mas somente aos 8 anos tivemos o diagnostico de NPB, desde então não fazemos ...

Tell your story and help others

Tell my story

View more

Niemann-Pick Disease forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Niemann-Pick Disease

0 people with Niemann-Pick Disease have taken the SF36 survey. Mean of Niemann-Pick Disease is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Niemann-Pick Disease

Join the map