Stories of Noonan Syndrome

STORY
Noonan Syndrome stories
i was born premature to a mom who lived a very unhealthy lifestyle so even though I was really small and sick, no one really thought much of it. soon they had to take it seriously because I was only getting worse not better.  The older I got, &...
Noonan Syndrome stories
My Little Lily was born on the 17th May 2016. She is a twin. Her sisters name is Anna. We all got a surprise when Lily was born as we were expecting her to be a 7.5lb baby but she was only 4lbs14oz. She had trouble feeding as she wouldn't latch and t...
Noonan Syndrome stories
       my name is bree. my daughter and fiance have noonan syndrome. Arraya was diagnosed at 6 weeks of age with failure to thrive, supravalvular pulmonary stenosis, bilateral cleft palette, poor latch on. the first year...
Noonan Syndrome stories
I am 22 I live on my own I have had 21 surgeries, heart-HOCM-now have and ICD, eyes, ears-now have a BAHA I have a drivers license
Noonan Syndrome stories
I was diagnosed at age 12 because of my short stature. I have a cardiac malformation but not usually related to Noonan syndrom. I'm small but at least the same height as my parents, 5 feet 6 inches ! The geneticist found right away which syndrom I ha...

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Statistics of Noonan Syndrome

5 people with Noonan Syndrome have taken the SF36 survey. Mean of Noonan Syndrome is 1825 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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