Story about Noonan Syndrome .

I'm a fighter!

Dec 31, 2015


i was born premature to a mom who lived a very unhealthy lifestyle so even though I was really small and sick, no one really thought much of it.

soon they had to take it seriously because I was only getting worse not better.  The older I got,  the more they found wrong with me.  I lived my first 17 months of life in hospital.  I was removed firm my parents custody so I was always alone during that time.  It made me very scared and mistrusting of everyone!!

Finally I got transferred to a smaller hospital where I met my new mom.  She was a nurse there.  A medical foster family took me home but I almost died after only a few days with them.  My mom was a specialized foster parent who took home children who were expected to die, but I didn't die at her home I just kept getting better!!

after a few years they asked my mom if she would adopt me :)

i have SHOC2, I'm really smart but I can't talk:  I know American Sign Language instead,  some signs I adapted myself because my hands can't form those complicated poses!

i am a jokester and happy.  I have a little foster sister who I like to boss around even though she's bigger than me, and two grown up brothers who will mess you up badly if you make me cry!! 

 

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Thank you for sharing your story! 

Commented 8 years ago Sarah 13

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