Rest and relaxation
Sleeping sitting up in a recliner with a soft neck collar on that I bought just at a retail store it's not a therapeutic one and I wear it around the back of my neck just to keep my head from falling sideways
My husband has been my supporter and my voice
Tranquilidade
I wear sunglasses outside even during a blizzard or hurricane. I have light sensitivity.
Neuro Stimulator implanted in Melbourne by Prof Peter Teddy in 2009. Helps to a painscore of 7/10.
Also chronic migraine sufferer
Neurologist familiar w Erythrolelagia & willing to work thru varied symptoms & cocktails of meds
ON Stimulator gave me my life back
Gamma Knife Radiosurgery (GKR)
A good husband who takes care of things when I can't
Topiramate
Valdoxan [Agomelatine]; immeasurably aids my sleep quality as well as treating anxiety & depression. Both of which have sleep issues at their core as well.
My best friends always worry about me.
Decompression surgery
Support from others who have the same disease
Sleep schedule
Pilates for strength and alignment
Pain psychology, self hypnosis, distraction, meditation
Support! Could not go wrong with support! My ONLY support being my fiancé Chris!
Joining the Australiasian Facebook support group
Meditation
Personal training sessions three times a week
Taking time to rest and recover from the bad days, getting on when I can.
Muscle relaxers and yoga
Massage therapy and stretching after classes
Avoiding scented products
Learning that is okay to slow down, my body is better for it.
Sleep
Being diagnosed and treated for hypothyroidism and lyme disease
Diagnosis that my pain was real
My best friend Becky and my sister Melissa because they fight this with me and fight to keep me from hiding in my house.
i love movies, from cartoon to gruesome horrors! as full distraction from pain.enjoy when in bed some can send me to sleep. but dome kerp me smiling on electric planket
Finding a doctor who practices both alliopathic and alternative treatments
Reduction of stressors
Pacing my activities
Support groups and my wife
Keep hope and remember that my SPIRIT is who I am,not my pain.
Chiropractic
how difficult can it gets
Peripheral Nerve Stimulator
Research, acceptance and the learned ability to fight through the pain.
Using Ice packs on my head when it hurts soothes the pain to a bearable level
Having baclofen added to my medical cocktail.
Nerve blocks, cervical steroid injections
Acupuncture once a week
Controlling lighting and sound in my environment are key.
Tramadol
Ice